Help Save my Wife's Life

33474400_1544574905849493_r.jpegMy wife, Leah,  became severely sick in 2015 with a life threatening disease. She has been diagnosed with a rare condition and a very complex detail of her illness is that she has severe mold exposure from back in 2015. That is where this all began for her. She went from being a very healthy, active, happy, free spirited, God loving woman and mother...to being bedridden. She has been fighting hard and struggling every single day for almost 4 years now. Our family has lost all of our financial income that I was able to provide. I resigned to be able to give her 24/7 care and to help to take care of our daughter. Leah has been diagnosed with Mast Cell Activation Disease, mold exposure, multiple chemical sensitivity, tick borne disease including Lyme, Babesia, Bartonella.  She also has been diagnosed with stage 4 endometriosis with ovarian endometrioma that ruptures one to two times per month(Leah is too weak to withstand surgery to get the mass out), severe migraine disorder, chronic fatigue, fibromyalgia, immune system dysfunction, dysautonomia, memory loss, stroke like symptoms, neurological degradation that is now thought to be irreparable, autonomic dysfunction, POTs and a list of others. She also has been diagnosed with diabetes insipidus due to the mold exposure. She suffers with extreme pain daily and is not able to take pain medicine due to her allergies. She has 4 safe foods. Her body is very malnourished. She has endured so much pain and suffering on a daily basis. She is on oxygen therapy,  in a wheel chair, and has to wear a respirator to even go to the hospital to get her IV treatments.  She has been going for these treatments for over 2 years now.  She is beginning to get beyond weak and tired. Her brain is not working as well and she is experiencing stroke like symptoms very often. She will wake up and not be able to move and she will struggle to breathe at times. She is taken by ambulance very often due to her condition.  Her symptoms have been getting much worse. And she is turning into one of the most severe cases her doctors have seen. She is not able to tolerate most of the standard treatments. Every other day she endures blood draws, IV infusions, hospitals, labs and she still makes sure to come home to our daughter every night and be her mother. Our little girl also has some issues from the mold exposure and allergy and we are Praying that she will never go through what her mother is battling. We have exhausted all of our financial resources. We took out 401k, Federal Air Marshals donated money and leave, Marines pulled together to help raise funds for us. Family has pulled together for us and Church's have held fundraisers. We appreciate everything and are grateful. We have lost our home, our car has been voluntarily repossessed, we have sold Leah's engagement ring and now her wedding ring. We have spent over $100,000 in medical bills and treatments and still owe a lot more money. Our focus is now on survival. We had hopes Leah would recover quickly and we were delivered the news today that in her current environment, since she was exposed to so many  forms of mold before this in 2015...HER BODY IS SHUTTING DOWN AND OUR DOCTOR FEARS THAT SOME DAMAGE EVEN WHEN IN A CLEAN ENVIRONMENT MAY BE IRREPARABLE. She is not able to even begin treatments until she is living in a sterile, clean room environment.  We are trying to build her a safe space where her body can begin to heal using MGO board that she can tolerate , low EMF and a positive pressure, air filtered, hospital grade, clean room that she can stay in to try to repair some of the damage to her body. She is being placed on home care once we get into a clean environment. The longer we wait the worse she gets. She has not been in public besides medical facilities since 2015. Here are some pictures of Leah before she became sick.  33474400_154457495359952_r.jpeg33474400_1544575032198314_r.jpeg33474400_1544575061486738_r.jpeg
To those that know us...we really struggled with asking for help. But, at this point we feel we are backed into a corner. Her biggest fear is leaving our little girl.  We appreciate any help and any donations. We really need Prayers. Leah says, "God is bigger than this...He will work it out." Her chant during every medical procedure, or when she is in so much pain and scared for her life is, "God is within her, she will not fall; God will help her at the break of day." Psalm 46:5  Thank you for your time and your Prayers. GOD BLESS https://tmsforacure.org/symptoms/symptoms-and-triggers-of-mast-cell-activation/   
Patient Worthy also wrote an article on Leah. You can view that here: https://patientworthy.com/2018/12/03/holding-on-to-faith-and-hope-leahs-story-part-1/ 
This is a glimpse of what she is going through daily. 33474400_1544575106815915_r.jpeg33474400_1544575136803311_r.jpeg33474400_1544575171806870_r.jpeg33474400_1544575220468380_r.jpeg33474400_1544575246175609_r.jpeg33474400_1544575272133057_r.jpeg33474400_1544575307711913_r.jpeg33474400_1544575340358294_r.jpeg33474400_1544575360458411_r.jpeg33474400_1544575384948810_r.jpeg33474400_1544575411676806_r.jpeg33474400_1544575430822912_r.jpeg

Donations (0)

  • Diann Boyajian  
    • $100 
    • 1 d
  • Anonymous 
    • $125 
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  • Kali Spears 
    • $500 
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  • Lori Chapman 
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    • 4 d
  • Anonymous 
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Organizer 

Leah Jalbert 
Organizer
Endicott, NY
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