
Angels for Molly Schwochow
Donation protected
My name is Kara and my dear friends Andy and Kim Schwochow have two beautiful daughters. Molly Schochow was born on December 11, 2015. At this time she is not quite 3 months old. In February, Kim began to notice a twitch in Molly's arm and leg. After some examining and two incredibly long days, they had a diganosis. She has been having short seizures due to a small focal cortical dysplasia on her right side of her brain(small small small area of the right cortex didn't form completely correct). All of her reflexes look good and she has hit all her milestones to this point in her life, and the doctors said that its pretty surprising that they caught this so early. The scary part is, she is so young no one knows how she will develop the rest of her brain. she could develop normally and have medication the dysplasia stays small and she may have it removed or medication and no more issues. it could grow and effect a bigger area and still just be controlled with medication, or other spots could become noticeable and effect other parts of her brain.
A few days ago baby Molly went back to hospital with two concerned parents searching for answers. Molly had a pretty rough two days. Multiple seizures and a few sedations to help break them. They had a repeat EEG to make sure nothing had changed and it all looked good. Still have the focal dysplasia and they were trying to get the right meds and dose to keep her seizure free. When they left for the hospital there was some concern about the possibility of infantile spasms. Today, March 7th, a repeat EEG showed that she does have infantile spasms. This is a very dangerous situation for them because of unknowns and possibility for serious brain damage if the medication doesn't work. They are trying a new medication that has less side effects and but has less data to support how well it works. There are other options that we can be switched to very very quickly(15 days we will know). The bad part of spasms is that if they aren't controlled that they will cause "hypsarrythmia". That has not happened yet, but will if the spasms are not controlled fast enough, and once there is damage, it can't be un-done.
The Schwochow family is staying positive at this time, but I fell that some funding from friends would be an amazing gift for them. They have a huge support system, but I would love to offer them some monetary support to help them with everything they are going through. Whether it's 1 dollar or 100 dollars, please feel free to help this family.
Words cannot express how much I believe this would mean to them. If you cannot donate anything, please keep the Schwochow family in your prayers!!
A few days ago baby Molly went back to hospital with two concerned parents searching for answers. Molly had a pretty rough two days. Multiple seizures and a few sedations to help break them. They had a repeat EEG to make sure nothing had changed and it all looked good. Still have the focal dysplasia and they were trying to get the right meds and dose to keep her seizure free. When they left for the hospital there was some concern about the possibility of infantile spasms. Today, March 7th, a repeat EEG showed that she does have infantile spasms. This is a very dangerous situation for them because of unknowns and possibility for serious brain damage if the medication doesn't work. They are trying a new medication that has less side effects and but has less data to support how well it works. There are other options that we can be switched to very very quickly(15 days we will know). The bad part of spasms is that if they aren't controlled that they will cause "hypsarrythmia". That has not happened yet, but will if the spasms are not controlled fast enough, and once there is damage, it can't be un-done.
The Schwochow family is staying positive at this time, but I fell that some funding from friends would be an amazing gift for them. They have a huge support system, but I would love to offer them some monetary support to help them with everything they are going through. Whether it's 1 dollar or 100 dollars, please feel free to help this family.
Words cannot express how much I believe this would mean to them. If you cannot donate anything, please keep the Schwochow family in your prayers!!
Organizer and beneficiary
Kara Lewis
Organizer
Cary, NC
Andrew Schwochow
Beneficiary