Help Hannah and her family with Medical Costs

A little over 3 years ago Hannah began having problems with her vision, and then started to have numbness and tingling in her arms and legs. She then started experiencing nerve and joint pain, hypertension, extreme fatigue, and dizziness.

Over the last 3 years Hannah has undergone extensive medical testing and treatments to try to determine the cause of her symptoms but has had little to no results. About a year ago she was officially diagnosed with hypermobile Ehlers Danlos Syndrome, Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), and small fiber neuropathy.

She has not been able to find any kind of treatment or medications that ease her symptoms and within the last 6 months she has experienced new and worsening symptoms. She began feeling a shocking feeling in her head and also what is referred to as “thunderclap headaches”, as well as a tightening pain in her stomach. She was able to get an MRI of her brain which showed abnormal results of a white matter lesion and prominent perivascular spaces. Unfortunately her doctors in her area are not sure what to make of her new and worsening symptoms and she is seeking a higher level of care.

She has an appointment with a neurologist  at the Mayo Clinic in Minnesota in July and is hopeful they will be able to find a root cause of her symptoms and find her a little relief.

Because her symptoms have been worsening, Hannah has been unable to work a full week at her job for the last several months and has been without her normal pay. She has also had to have extensive testing and treatments done within the last year and is about to have even more done at the Mayo Clinic in July. Hannah is hoping for a correct diagnosis soon and treatment options that will get her back on her feet and back to her normal routine with her family. Any help you can provide is much appreciated.