Please Help Us To Get Frankie the Specialist Medical Care She Urgently Needs

Frankie has been diagnosed with ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), Arnold Chiari Malformation Type 1 with Associated Hydromyelia, and NDPH (New Daily Persistent Headache). These conditions are drastically impacting her daily life.

The Neurologist has advised that she needs to be seen by a Cardiologist with expertise in POTS (Postural Orthostatic Tachycardia Syndrome) and a Pulmonologist to investigate new concerning symptoms. She is also undergoing investigation for a possible CSF leak.

She will require a Phase Contrast Cine MRI scan in the coming months. This specialised imaging is critical in assessing how her condition is affecting her brain and spinal fluid flow, and will help guide future treatment decisions.

The funds generated here will be used for her ongoing medical consultations and investigations, and weekly ongoing Physiotherapy.

If you are able to donate we would be incredibly grateful, and if not just sharing this would be much appreciated. Please pray that she can make progress, she is longing to be back at school and church meetings, and doing normal things again.

THANK YOU so much, Craig & Karen