Hello, my name is Mona, and I am along with Lavones kids reaching out to my family and friends with a heartfelt request to support my sister, Lavone, as she navigates a challenging time in her life. In December 2023, Lavone received the heartbreaking diagnosis of Bulbar ALS (Amyotrophic Lateral Sclerosis), also known as Lou Gehrig’s disease. ALS is a degenerative neuromuscular disease that affects approximately 2,500 to 4,000 Canadians. Unfortunately, there is no cure for this disease, so our hope is to focus on ensuring that Lavone’s quality of life remains as high as possible, allowing her to experience life to the fullest. Lavone was diagnosed in December 2023, about 14 months after her first symptom—slurred speech—appeared.

Although bulbar ALS is known to progress quickly, Lavone has faced each challenge and her new normal with resilience. The ALS Society of Canada, CAYA, and PROP Canada have all been incredible resources, providing her with communication tools and a wheelchair. However, one essential need that is not covered is a vehicle suitable for transporting her wheelchair. As a result, she is now confined to a wheelchair, making it difficult for her to attend appointments and limiting her ability to enjoy simple pleasures outside her home.

Wheelchair-accessible vans are a significant expense but have become essential for Lavone at this stage of her journey. Many of you have kindly asked how you can help, and while we have always encouraged donations to the ALS Society, we’re now asking you to consider giving a little more from your hearts. Your support will enable Lavone to create meaningful memories with family and friends beyond the confines of her home.

Lavone has always been a generous soul, giving so much to her community—both financially and emotionally—whenever there was a need. If you are able to help, your contribution can truly make a difference in her quality of life during this difficult time. If you are unable to assist financially, sharing this message can also go a long way. Thank you for considering this.