Our 18 year old daughter Hannah developed severe, incapacitating jaw pain in October 2018. Over the past few months we have learned that she is suffering with degeneration in her jaw joints which has led to her losing jaw function.
She has not been able to eat since Christmas 2018 and is surviving on emergency nutrition drinks from her dietician. Hannah has been bedbound for 5 months as it is too uncomfortable for her to sit up, walk or stand. Even talking can trigger unbearable pain. Her condition is not well understood in Ireland and the treatment outcomes here are poor, generally involving a lifetime of pain. We have tried every kind of treatment available to us over the past 8 months but she has deteriorated rapidly.
The only hope we have at the moment is to bring Hannah to an oral maxillofacial surgeon in London who is a world leader in jaw joint treatments. He has put forward a plan of surgery and stem cell treatments with the hope of saving Hannah's jaws so she can live a normal life.
At the moment every day is spent trying to manage Hannah's pain and keep her strong enough bear it. It is such a distressing illness to have and time is of the essence as her condition gets worse each week. It is so hard to see her suffering every day and we need to bring her to London for treatment as soon as we can.
We are so grateful for any help that anyone can give Hannah, either to contribute to the campaign or sharing it with others.