I’ve been dealing with severe pelvic pain and fatigue along with a whole heap of other symptoms that have made it really hard to focus, work, play music and do even the simplest of tasks. I’ve been fighting my body for too long and things finally came to a head toward the beginning of 2019. I’ve been to many doctors throughout the year and we are pretty certain I have Endometriosis, which is a chronic inflammatory condition that causes extreme debilitating pelvic pain among many other issues. THIS ARTICLE
will better help you understand the symptoms and pain I am dealing with.
There is currently no known cause or cure for the disease. The best shot I have at treatment and getting back to my active life is through a surgery with a specialist. And great news! I found one of the top Endo Surgeons in the country! If all goes well, my surgery is scheduled for early October. It’s hard to say how long I will need to recover until they know the stage of the disease, however the doctor tells me to plan for at least 8+ weeks.
Due to our band being on hiatus and my limited ability to run my freelance art business, I have been struggling financially to cover my monthly expenses and prepare for the medical bills, medicine, treatments and supplements I will need to cover during my recovery.
I am reaching out to the community who has supported our music for many years to help me in this process. I am very confident that I will get to a place where I can manage the pain/symptoms better and be able to get back to making music and rocking out with you all once again!
It is the love and support of my friends, family and community that truly helps me heal!
I thank you with all my heart.
Rock N' Roll N' Love Always,
Tory Elena WHAT I NEED FINANCIALLY:
Due to the severity of my symptoms, I am not able to return to full-time work until I get proper treatment. And even then, it will be a long road to get back to a level where things are manageable. I really need to focus on resting as much as I can right now to make a full recovery.
Any money I receive will go towards:
- Surgery/Medical Bills
- Rent, Bills & Expenses while I am unable to work
- Pain Management Therapy, Acupuncture, etc...
- Healthy Food, Supplements & Vitamins for a specific Endo Diet
- Getting me back on track to live my healthy, happy and active life I so very much miss! MORE INFORMATION ON ENDOMETRIOSIS:
Endometriosis is a condition where tissue similar to the lining of the uterus (the endometrial stroma and glands, which should only be located inside the uterus) is found elsewhere in the body. When it is inflamed (usually during but not limited to the period cycle or ovulation) it causes internal bleeding and scar tissue and lesions can even fuse organs together. It causes many symptoms including (but not limited to), severe pelvic pain, debilitating cramps, back pain, sciatic and nerve pain, severe abdominal bloating (I randomly look 5 months pregnant!), nausea, constipation, GI issues, severe fatigue (comparable to those with cancer), brain fog, severe migraines, weakened immune system, anxiety, depression and high chance it can lead to infertility and lead to or co-exist with other conditions such as Ovarian Cysts (that rupture causing more pain), Adenomyosis, Pelvic Inflammatory Disease, IBS, etc . The pain often correlates to the menstrual cycle, but a woman with endometriosis may also experience pain that doesn’t correlate to her cycle – this is what makes this disease/condition so unpredictable and frustrating. Stress can causes inflammation and make the pain worse which in turn causes more stress, its a viscous cycle that takes a holistic approach to get on top of. There is no known cure for Endometriosis. Laparoscopic excision surgery is the gold standard for treatment. It is the only definitive way to diagnose Endometriosis, and in most cases the disease can be diagnosed and treated in the same procedure.
Yet, there are very few specialist trained and experienced at the level that the surgery is needed, And in a lot of cases women need multiple surgeries over the years. These are costly procedures and a lot of times can be out of network for the patiences insurance.
- Endometriosis is among the top 20 Most Painful Health Conditions
- 1 in 10 Women have Endometriosis and many more remain undiagnosed
- Currently there is no known cause or cure
- It can take on average 10 years for women to get diagnosed
- 176 Million people suffer from Endometriosis yet there are less than 200 surgical excision specialists
Watch this TED TALK (fast track for most the info):The Most Common Disease You’ve Never Heard Of | Shannon Cohn
More links on Endometriosis:https://www.smh.com.au/lifestyle/health-and-wellness/why-is-women-s-pain-less-likely-to-be-treated-20190830-p52mia.html?fbclid=IwAR1q6baRnsHpOQKWjN57A8IcG9f1I-S_qyDkNFcAsHYDrAEbd80mKCWKsBc https://www.theguardian.com/books/2019/sep/02/why-dont-doctors-trust-women-because-they-dont-know-much-about-us https://www.theguardian.com/society/2015/sep/28/im-not-a-hypochondriac-i-have-a-disease-all-these-things-that-are-wrong-with-me-are-real-they-are-endometriosis https://www.theguardian.com/society/2015/sep/28/endometriosis-hidden-suffering-millions-women OTHER WAYS TO SUPPORT:
- Send me LOVE
- Recommend books/movies/podcasts I can listen to while resting up
- READ THIS
for more insight on how to support someone with Endometriosis.
- Share this campaign with anyone you think may want to help