my name is Ashley Rusin and I’ve dedicated my life, my time, love, energy, will power, and fighting for my mothers rights the last entire year while she had been admitted to the hospital 6/14/2024 unresponsive and my sister calling 911 while she was with her. My mother was diagnosed with Wernicke–Korsakoff syndrome aka wks, while she had signs for weeks prior but nothing serious that alerted the doctors that was “alarming” or needed “further medical attention or testing” she was completely normal like she has been her entire life then one day while my sister Jj was with my mom at her house just happened to stop by to see if she needed anything my mother went unresponsive and foaming at the mouth. 911 was called she was taken to uhs and admitted of Jj didn’t call 911 or even stop by that day my mother wouldn’t have made it she would have died they made that very very clear. My sisters and I did everything we could fought for her advocated for her as best we could even though I (Ashley) was always her proxy even still

to this day on her paper work in in the system I am her proxy since she got married almost 4 years ago now they say that “trumped proxy” by law I know it didn’t and I know they were wrong but fighting an entire hospital and her husband while working full time was exhausting and seemed impossible. Anyways a LONG journey many surgeries, mris, x-rays, testing, wrong treatments and tons of fighting after her getting transferred to north east rehabilitation center where she received NO rehabilitation NO treatment NOTHING to benefit her I fought long and hard for her to come home fought for her to get decanulyzed (get her trach put) I fought long and hard for that to happen so she could receive drinks then eventually food because there was NO reason for her to have a trach to begin with let alone go to this rehabilitation center with one when she wasn’t even on a respirator for more than 3 months prior to getting moved out there! So they could have taken the trach out down here! And saved us a whole lot of abuse, neglect, and heart ache! After her husband going up every single weekend and holiday and days they needed him and my sisters and I going up every chance we could we saw the neglect, abuse, mistreatment my mother was receiving and cried every single time! Myself (Ashley) originally being her proxy for my entire life I felt useless but also knew I needed to fight! I fought for her to get that trach out to get fluids to get drinks and food then fought and had to fight hard for her to come home. Her apartment with her husband they shared for 6 years was on the second floor. So I told her husband find a place that was on the first floor for her to come home. He told me “he was and was trying” but every video conference and video meeting we had got sadder my mom begging to come home made me feel worse and worse I didn’t sleep I stressed 24/7 it’s the last place she ever wanted to be! My entire childhood she’d always say “DONT LET ME END UP IN A HOME PUT A BULLET IN ME BEFORE THAT HAPPENED” the last time I visited her after her “meeting” she looked at me and said “Ashy don’t let me die here take me home TAKE ME HOME” I cried the rest of the time not letting her see me the whole way 3 hours home crying so I fought hard for her to be here I looked up everything she needed a bauyer wheel chair, a mechanical medical med, a recliner she would fit in and could sit in alllllll her supplies she needs so I talked to her husband and my sisters we decided her husband would continue to find a fort floor place for them and we could bring her home to my place with Stephannie and my son temporarily just to get her out of the place she was being neglected, mistreated, abused and ignored in! I fought long and hard I literally had to call and fight every single day then got her bed the hoyer, her recliner all her supplies and told them “IM COMMI BF TO GET MY MO. THOS THURSDAY SO THATS WHEN SHES LEAVKNG THAT HELL FOR SAKEN PLACE! SO YALL BETTER BE READY” and my sisters and I went there and took her fucking home! It’s been 7 months I took a leave from absence from my job to take care of my mom 24/7 she is paralyzed, can’t move much can’t do anything for herself can’t hold a cup or utensil to feed herself! That “rehabilitation center and brain trauma center” failed her %1000000 which we plan on and need to sue. It that’s all on her husband we can’t take leeway in that or run it! Since he’s her husband it’s been 7 months since I took a leave from work to take care of my mother in my home with my sister Stephannie where obviously my son lives and it has NOT been easy at all! It was supposed to be temporary and it’s been 7 months a long

agonizing time

worh cdpap aka ppl for me to get paid to take care of her I STILL HAVE MOT RECEIVED 1 CENT!!! So unfortunately I’m doing this go fund me to try and raise money for bills, rent, Nyseg which we all know Nyseg is out of control and taking every customer they have! , food and drinks which she’s allowed and cleared all thin liquids and food! Which was amazing for her!, medical supplies, attended (diapers), incontinence pads, wipes, disposable chucks, creams, ointments, all her medications which she has SO many! So we are raising money to try and cover some of her expenses! Since her insurance dropped her for no reason given! She was denied disability even though she’s fully paralyzed and can’t not move!!! She’s one year to young to receive her retirement and Medicaid, DSS won’t help in any way shape or form!!!!! So I’m left with my last straw I’ve waited almost over a year to do this but it’s the only option left since every thing has denied or turned her away! So any dollar counts if you can’t contribute please share and spread the word my cash app is $AshleyRusin if you can or feel more comfortable donating there instead gofundme where they take %10!!!! please help this is my last attempt I don’t want to have to have her go in a home or facility but there only so much I can sacrifice and do! I have bills I have to pay! I have a landlord up my ass Nyseg at my house every 29 days looking to shit me off no snap to feed my mom no Medicaid to cover her expenses and not cover her 10+ prescriptions medicications! Anyone who knows me knows I’m a very private person and I NEVER ask for a thing! But I’m not asking I’m asking for my mother if you want to google Wernicke–Korsakoff syndrome stage 2 to see how serious what my mom has is and how serious my situation taking care of her is feel free! It’s heart breaking and completely preventable!! And she went to her doctor multiple times for her symptoms over a 2 year span and he chalked it up too her smoking and drinking!!! All he had to do was take her symptoms seriously and do the right testing! And she would have gotten instant results and instant immediate thiamine (botany) treatment!! That’s all Wernicke–Korsakoff syndrome aka wks is a severe thiamine (vitamins B) deficiency!!! That’s all it is!!! That’s what’s so heartbreaking and ridiculous about this whole situation is! I wanted her transferred to upstate medical immediately and her husband wanted her to stay at UHS and be treated which I had zero say in and ruined my mothers life! So please if you can contribute in anyway even if that’s just sharing this post my family and I really appreciate it it! I’m so behind in bills just to take care of her and need to continue to pay and get her meds and medical supply! Attends (adult diapers) incontinence pads, disposable chucks (odd that ginger her incase she leaks or has an accident, wipes, ointments, prescribed RX ointments and treatments, gloves, disposable bags for everything, her 10+ Rx medications, plus her expenses being transported to all her medical/ psychiatric appointments! We don’t have a vehicle to transport her so we have to pay out of pocket to do so for her monthly medical appointments that’s not including her new psychiatric, dentil, pain treatment doctors appointments and more to come every week there’s something new! She needs desperately home ot/pt treatment along with , home nurse care, and home aid care 24/7!!! Please help me help my mom get the most care she can get while her insurance drags this bullshit out of them dropping her and me trying to get her Medicaid!! It’s a process and my landlord doesn’t care about this process, Nyseg doesn’t care about this process nor does cvs for her medications, nor does the grocery store care about this story or process! Everything takes time and time they literally take while all this my landlord, Nyseg, cvs, grocery stores care about any of this!!! My mom needs help and everyone’s assistance!!!!!!!!! This is our last chance and last step to ask for help anyway you can!! Please donate every dollar counts and every share counts please I do not want to have to put her in a home or facility!! Just to have to pay bills and expenses she means more than that to me!!! Please please please donate! We appreciate it and love you all more than you could ever know! I’ve waited so long because she’s a very private and proud person! She doesn’t even know I’m doing this! But at this point I have no choice! Xoxox