Urgent Care for Debilitating Health Condition

In August of 2022, I had a severe bout of Covid. I had extreme joint pain and fatigue to the point I could not even stand up to shower. I then suffered brain fog and loss of smell for weeks, which went back to normal. As time went on, I began to notice more and more changes. I started to become more fatigued. I was having more joint and muscle pain. My memory and concentration were starting to be affected. As time went on, I began to even lose my appetite and experience more infections and cognitive deficits.

By early 2024, I was having night sweats, debilitating brain fog and short term memory loss, digestive problems, severe weight loss, depersonalization/derealization, and tremor that started in my left thumb and spread to the rest of my body. Essentially, my body has started an autoimmune process often seen in post viral syndrome or ME/CFS.

After 20 or so visits to doctors and the ER, I was becoming worse and had no help. I lost my ability to function on my own, which led to me attempting suicide. Every stress and crash I had, lowered my baseline. This is why I was missing for 3 days.

My mom flew from NC to come get me from Hawaii. I had to leave everything behind, including my dog as I can no longer even go for walks without pain and exhaustion and nausea. I can no longer even tolerate the sun, which I have always loved.

I initially found some help with steroids, NSAIDS, and antihistamines. They helped me put some weight on. But things are getting worse and I don’t like to take medications, as they have side effects and most of them aren’t working anymore.

The pain is getting worse. No medications or herbs work or affect me the same. Some of them cause my body to go into an almost seizure like state so I can not even use THC to help with pain. It is becoming increasingly difficult for me to digest food. The process of digesting completely wipes me out and my entire abdominal area spasms for hours. The area where my ribs connect are in constant pain. It hurts to lay on my side and on my back. I now have an extremely loud ringing in my ears that is constant. I am becoming more and more sensitive to any stimuli. Lights and sounds are becoming painful. I spend most of the day in bed because any activity causes me to shake and twitch and become exhausted and crash for days. If I get emotional or stressed, I experience severe brain fog and my vision goes blurry. My body seems to be attacking the cartilage and nerves in my system. I have tried to change my diet, I have tried fasting, detoxing, herbs, stretching. Everything I’ve tried has made me worse or temporarily better and then worse. There is not really any treatment and it’s extremely difficult to diagnose because all labs and scans come up normal with just a few abnormalities that most doctors won’t even recognize. Because I am young and look relatively healthy, most doctors have just tried to give me antidepressants. It has been difficult to even get to a neurologist. My muscles twitch involuntarily all over my body throughout the day and are getting weaker. Exercise makes me worse.I am in tears every day because I know I’m getting worse and I know there is very limited treatment and no chance of recovery and I know that at some point I will not be able to walk or eat.

I also feel immense guilt for my mom having to take care of me, spend her time and money on this, worry about me, and watch her daughter deteriorate mentally and physically as time goes on. She has been working overtime just to pay for the tickets. I am obviously not able to work and exhausted much of what I have saved. I only have enough left for assisted suicide if I get to a vegetative state.

I am asking for help so that my mom will be able to give me some sort of care as I progress. I have no medical insurance, no way of paying for medication, or even a way to get to doctors without her. She is the only family I have here and I’m relying on her for all of my care. Anything would help. Mahalo