Dear friends, family, and compassionate strangers, I am reaching out with a plea for help again . Please help our little girl Roxanne get the urgent medical treatment she needs.

Roxanne has severe scoliosis

and needs surgery. Our only option now is to open up Roxanne’s gofundme again and make our target. To bring her back to Florida where Dr Feldman is her only chance to receive the treatment she needs.

We would like to raise 60k to help us pay for surgery.

Overview of Roxanne’s Journey

On the 20th of May, 2018, my daughter Roxanne and son Curtis were born. Roxanne was born with a rare condition called Arthrogryposis, which severely impacts her physical movement in all four limbs, resulting in her being unable to sit-up, stand, or feed herself. Having been on a waiting list in Ireland for over four years, we decided to seek a second opinion relating to her condition and treatments. After much research, we came across Dr. Feldman MD of the Paley Orthopaedic and Spine Institute.

Read the full details of Roxanne’s condition below.

Who is Roxanne?

Roxanne is now 7 years-old and is the big sister (by all of 1-minute) to her twin brother, Curtis. They are best friends and they do everything together. Roxanne and Curtis also have an older brother, Ryan, who they both look up to greatly. Roxanne’s condition has never held her back, she is extremely intelligent and energetic. She has a love for life and lights up our lives (and everyone else who meets her). She loves to paint, and especially loves unicorns and fairies; she is a real girly girl. She is very patient with everything she commits herself to – you’d be surprised how much she can achieve with her lack of flexibility.

We hope to update some of her paintings and projects here

What is Roxanne’s Condition?

Roxanne was born with a disability called Arthrogryposis, a rare condition which affects every aspect of her life.

She cannot walk, crawl, or feed herself because of her condition. She rolls on the floor at home to play and move about and has a customised power wheelchair to get around when outside. She is intellectually age appropriate and goes to school in Gaelscoil Carlow along with her twin brother, Curtis.

Roxanne has been under the care of CHI children’s health Ireland. She waited 4 years on an urgent surgical waiting list to have her dislocated hips done and to shorten her femur to enable her to sit and move more freely.

She never had this surgery in Ireland she was just removed from that wait list after 4 long years of hoping and then disappointment to be then removed with no explanation.

After much research, we decided to go abroad to a specialist in Arthrogryposis, Orthopaedic Surgeon Dr. David Feldman MD of the Paley Orthopaedic and Spine Institute in West Palm Beach, Florida. Dr. Feldman brings over 25-years of experience in paediatric orthopaedics, spinal deformity and joint preservation to his practice and specialises in Roxanne’s condition.

After our initial zoom appointment with Dr. Feldman, we decided to have an in-person appointment with him. We travelled with Roxanne to the Paley Clinic in Poland and we instantly seen a different level of care and understanding, and an urgency to help Roxanne improve her quality of life and her future.

As she has scoliosis, the initial part of Dr. Feldman’s medical plan was to have a full MRI of the spine. This was to rule out any issues with the spine before making a plan for leg and hip surgery.

Medical Treatment Required for Roxanne

We began this journey hoping to provide Roxanne with a better quality of life with hip and joint surgery that would allow her to be weight-bearing on her limbs and sit upright.

After staying in Florida from April to June 2025 Roxanne had two very major leg and hip surgery’s done for dislocated hips and legs to help her sit and be able to move her legs .

10 months on from these surgery’s she is going from strength to strength. She can sit at last after waiting 4 years on a wait list. Dr Feldman in two surgeries fixed her legs and made them functional.

To finally not have to worry about her dislocated hips and her complete lack of flexibility in her legs is a huge relief .

No one should have to live with two dislocated hips for 6 years of their life .

As we mentioned before Roxanne has scoliosis.

By being left untreated for her legs and hips this scoliosis became very severe.

She now has a curve of 80 degrees. A curve of anything over 50 degrees is seen as very serious and would need surgery.

When we had our first appointment with a spinal surgeon here in Ireland in August 2025 , we soon became aware that yet again our beloved little daughter would not be getting her scoliosis surgery anytime soon if at all .

Under CHI children’s health Ireland our daughter Roxanne has been completely neglected.

To be left with hips and legs that needed urgent surgery and now 7 years on to be left

with dangerous severe scoliosis.

which was caused from the lack of intervention on her hips and legs.

Dr Feldman in Florida said that Roxanne must have her dislocated hips done and be able to sit up before under going scoliosis surgery. He said that time was now of the essence . It was literally a race to have the hips and legs in a good position and Roxanne to be able to sit up un aided To then proceed without delay in having this scoliosis surgery done.Now that this has been successfully accomplished because of everyone’s generosity in donating to Roxanne we were able to go to Florida and she had two major surgeries and intensive physical therapy for 3 months last year. Again now we must leave Ireland . This will be her only

chance now of of having timely surgery to correct this curve on her spine .

She’s doing so well and thriving after everything she’s been through.

We can’t let this scoliosis continue to progress. It will destroy her life and she will become permanently damaged.

We have tried to get funding to bring Roxanne abroad , we have reached out to the Minster for health. I have spent 6 months trying asking pleading with TDs some who brought this up in Dáil Éireann . They won’t fund our daughter to go abroad and get this surgery done and the longer she waits the more dangerous this becomes.

Roxanne is a happy little child who just wants to live life and have fun . She has been meet with huge hurdles and sometimes as her mother I honestly can’t believe how strong and resilient she is . It truly is amazing to watch her go through life and just want to be able to play and paint and go to school like all other little children. Ireland has not done her justice every turn she takes to try and get the aids she needs and the life saving surgery’s has been an uphill battle. Constant fight it’s not fair for children who have these rare disabilities to have to fight for their very survival.

Dr Feldman has done everything for our daughter and we are so grateful to him and his expertise, and to everyone who donated.

We ask again please share our story and help us again.

we need to raise another 60K .

This will help us travel to Florida and have growing rods placed in Roxannes spine to strengthen the 80 degree curve and stop her spine from deteriorating further.

Any contribution, no matter how small, will make a significant difference to our mission. Your generosity will help us provide the surgery Roxanne needs to relieve the pressure on her spine. We understand that some may not be in a position to donate, but perhaps you could consider sharing this message with your friends and family to help spread the word.

If you feel like you can assist us in a more direct way, you can contact me directly.

Publishing Updates

We will provide updates on Roxanne’s progress throughout the treatment and how the funds are being used. We want to ensure supporters of Roxanne that the donations are being used to drastically improve her future.

A Sincere THANK YOU

We want to thank everyone for their support and kind words. It is a difficult time for our family and the support we have received from everyone has been heart-warming. Although it will be difficult, with your help we can make such a difference to Roxanne’s future.

Thanks again, from Eileen Byrne Auntie of Roxanne Kelly and Beneficiary who will be overseeing management and withdrawal of the funds to pay for Roxanne's surgery .

Máirín & Declan Kelly, Roxanne’s mum & Dad