A Medical Fund For Avery Paige
Donation protected
God is within her, she will not fall; God will help her at break of day. -Psalm 46:5
Welcome to our page! I'm so happy that you have stopped by, because my sweet little family is in need of your help, and I am sure you can do just that, whether it be a monetary donation, thoughtful gifts, and/or continuous prayers for a speedy recovery for Avery.
I am going to begin posting updates of Avery's stay in the NICU on a Facebook Group, so I will keep details minimal here.
Avery was diagnosed with a Sacrococcygeal Teratoma (SCT) at 18 weeks, and I have gone for ultrasound and testing every single week since diagnosis. For her condition, the main concern was heart failure, and we monitored that and never had any issues. At birth, the doctor's said that her initial diagnosis was not correct, and that she had what is called Fetus-in-Fetu. This is a very rare condition in which one twin fails to develop as early as 4 weeks gestation, and the larger twin encapsulates the smaller twin. This rare congenital anomaly, which was reported around 100 times since its first definition in the nineteenth century, has been discussed with respect to its prognosis and treatment in the light of the relevant literature. Avery is literally one in half-a-million. Her teratoma was removed 2 days after birth and weighed almost 2 pounds. She has a large incision, but is healing well on her tummy. Her surgeon will follow her for about 10 years to check on her, and make sure that the tumor does not begin to come back. Due to the weight of the tumor, she does have hip dysplasia, so PT will work on her scapulas as well.
When she was born, her cardiologist discovered that she also had Coarctation of the Aorta, which was recently corrected during a successful heart operation.
As a result of the heavy tumor, Avery has hip dysplasia, and also needs some work on her scapulas, which will be done over time with physical therapy.
As some of you know, I was in a total loss car accident about 2 weeks before Avery was delivered. I had been so focused on her and anxious about her arrival, that I had let my car insurance lapse literally one day before totaling my car. The savings I did have for Avery disappeared shortly after, and we are left without transportation. The infant car seat that I had planned to put her in had to be discarded, and even more money was spent on a replacement. Before her stay in NICU, our medical bills added up to $35, 926. Fortunately we do have insurance, but by the time she comes home we will probably have a substantial amount to pay. Due to her condition, it physically affected me and I had to quit working at roughly 30 weeks. Her childhood costs will not be cheap, and any money that would go to college savings will most likely be spent on medical bills.
I'm so blessed to have so many wonderful people in my life that care so much for both of my daughters. I'm aiming for $20 donations, and hope to raise enough to make it through an expensive NICU stay while we are here. You can also help by PRAYING for us often, and SHARING this page with everyone you know!
You are ALL incredible, and I can only hope to pay it forward one day very soon!
Welcome to our page! I'm so happy that you have stopped by, because my sweet little family is in need of your help, and I am sure you can do just that, whether it be a monetary donation, thoughtful gifts, and/or continuous prayers for a speedy recovery for Avery.
I am going to begin posting updates of Avery's stay in the NICU on a Facebook Group, so I will keep details minimal here.
Avery was diagnosed with a Sacrococcygeal Teratoma (SCT) at 18 weeks, and I have gone for ultrasound and testing every single week since diagnosis. For her condition, the main concern was heart failure, and we monitored that and never had any issues. At birth, the doctor's said that her initial diagnosis was not correct, and that she had what is called Fetus-in-Fetu. This is a very rare condition in which one twin fails to develop as early as 4 weeks gestation, and the larger twin encapsulates the smaller twin. This rare congenital anomaly, which was reported around 100 times since its first definition in the nineteenth century, has been discussed with respect to its prognosis and treatment in the light of the relevant literature. Avery is literally one in half-a-million. Her teratoma was removed 2 days after birth and weighed almost 2 pounds. She has a large incision, but is healing well on her tummy. Her surgeon will follow her for about 10 years to check on her, and make sure that the tumor does not begin to come back. Due to the weight of the tumor, she does have hip dysplasia, so PT will work on her scapulas as well.
When she was born, her cardiologist discovered that she also had Coarctation of the Aorta, which was recently corrected during a successful heart operation.
As a result of the heavy tumor, Avery has hip dysplasia, and also needs some work on her scapulas, which will be done over time with physical therapy.
As some of you know, I was in a total loss car accident about 2 weeks before Avery was delivered. I had been so focused on her and anxious about her arrival, that I had let my car insurance lapse literally one day before totaling my car. The savings I did have for Avery disappeared shortly after, and we are left without transportation. The infant car seat that I had planned to put her in had to be discarded, and even more money was spent on a replacement. Before her stay in NICU, our medical bills added up to $35, 926. Fortunately we do have insurance, but by the time she comes home we will probably have a substantial amount to pay. Due to her condition, it physically affected me and I had to quit working at roughly 30 weeks. Her childhood costs will not be cheap, and any money that would go to college savings will most likely be spent on medical bills.
I'm so blessed to have so many wonderful people in my life that care so much for both of my daughters. I'm aiming for $20 donations, and hope to raise enough to make it through an expensive NICU stay while we are here. You can also help by PRAYING for us often, and SHARING this page with everyone you know!
You are ALL incredible, and I can only hope to pay it forward one day very soon!
Organizer
Olivia Surgnier
Organizer
King, NC