Meet Michael Trent! 14-year-old, spirited, athletic, fun-loving man-child;
awesome big brother and
and the bestest, best friend.
Mikey was diagnosed with a small aneurysm in his carotid artery about 4 years ago. Doctors told his parents that this was not to be worried about but that they would do another scan in 5 years to check that it hadn't grown.
About 2 months ago, Mikey asked if he could try out for football. His mom insisted that he couldn't until another MRI was done to check on his aneurysm. She had some convincing of his medical team to do because she wanted the scan done earlier than they had recommended but they got it done. What they discovered was an absolute shock... there was a new aneurysm, a fuseiform aneurysm in the basilar artery (middle of the brain stem) which was significantly larger in size than his original carotid artery aneurysm.
His doctors and parents worked to figure out a plan for almost a month for this rare and difficult diagnosis. His parents were advised to come back in 3 to 6 months to do another check-up and discuss putting in a stent instead of risking surgery to remove the aneurysm from this delicate location.
4 days later, on July 4th, Mikey suffered a stroke in his brain stem from a blood clot that had formed. No one could see the blood clot in CTs or an MRI until they did a CT with an angiogram and by then the damage was done. The doctors said it happened within 5 minutes and there was nothing anyone could have done to prevent it. Mikey has been in the ICU ever since.
He has now been diagnosed with Locked-In Syndrome with paralysis. This means that the damage done by the stroke in his brain stem has paralyzed him to the extent of no longer being able to move anything except his eyes, and only vertical movement and blinking at that. This is a paralysis that is rare and is unlikely to resolve. The Plan (so far)
To provide him with any encouragement and support to recover any of his voluntary muscle movement that he can, (especially in his face and throat). Physical, Occupational, and Speech Therapy as soon as possible are a must
in encouraging any of this recovery.
His mom and step dad (Dezaree and Matt Corwin) are already working out the details to renovate their home so that Michael can come home and have the space and access for his supplies and comfort that he needs AFTER he has grown strong enough to be discharged from the ICU and successfully completes a stay in rehabilitation.However
, there will be tremendous unforseen costs moving forward with Michael's care that include everything from communication devices, therapies, rehabilitation, etc.Can you help?
Any amount of donation and/or support you can give is appreciated more than we can express. Or if you know of anyone or any treatment that we can look into to help our boy, please share your stories with us!PLEASE pass this information along
to family, extended family, best friends, friends, friends of friends, charities, do-gooders, etc. in the area and beyond to put their positive vibes, prayers, experiences and donations toward this mighty feat to help our family provide the best support and comfort to him that we can in this life-changing moment.
All you have to do is click the donate button above and/or share this link through Facebook, Twitter, Instagram, email, text, etc.
Thank you so much, from the bottom of our hearts, thank you.