Hannah is a bright, resilient young girl living with Dravet syndrome, a rare and severe form of epilepsy that begins in infancy and affects every aspect of life. Despite the challenges she faces (daily seizures, developmental delays, and the constant uncertainty of an incurable disease) Hannah continues to inspire everyone around her with her courage and joy.

Dravet syndrome is a lifelong, life-limiting condition with no known cure. Current treatments focus only on reducing seizures and do little to address other challenges, such as cognitive development. While gene therapy offers hope for the future, current clinical trials are not accessible to Hannah because of strict eligibility requirements.

We are now embarking on a new and exciting journey: a personalised medicine approach tailored specifically to Hannah’s unique genetic profile. This innovative treatment path offers a new ray of hope, not just for managing symptoms, but for truly improving her quality of life.

Personalized medicine is complex, costly, and not yet covered by traditional healthcare systems. That’s why we’re asking for your support. Every contribution brings us one step closer to giving Hannah the care she deserves, care that could change her future.

This research and treatment could also benefit countless children and adults in the Dravet community who share similar mutations to Hannah’s.

Join us in helping Hannah and others live fuller, brighter lives. Together, we can make a difference.