Unique Sense of Tumour Needs Help!

***

Update from Rach...

I just wanted to say a huge thank you for everyone's donations and all your support.  After a meeting last week with my Oncologist I can now confirm we have a 'provisional' start date for my treatment, which is the 15th February 2022. The whole thing feels so surreal and none of this would have been possible without you all, so I am eternally grateful for all of you and the words thank you just don't seem enough. It has become clear that if this treatment 'works' in either stabilising the disease or eradicating the disease, then I will need to continue with 'maintenance' treatment which will be 'on-going' for as long as we can afford it/need it. This has been priced at £7000 per treatment (which would be once a month). It honestly feels like it is never ending and the costs keep piling up, and the whole situation is just a mind field, yet we will forever continue to raise as much money as we can for whatever I need to keep me alive. On this matter, if the fundraising does exceed any amount which I need, the funds will go towards any future treatments I may require or anyone else that finds themselves in a situation like mine within The Christie. 

Thank you again and please keep spreading the word about the fundraising & about Sarcoma!

***

Original story below...

Hey!

 

As most of you will know I’m Rach. I was diagnosed with Advanced Sclerosing Fibromixoid Sarcoma in Dec 2020. I never wanted a ‘diagnosis time frame’ as I have always tried to as positive as possible… it’s nearly been a year of different types of treatments and medicines and time has started to tick a little faster.

 

Sarcomas are so rare that treatment options for them haven’t changed in the last 40 years! My oncologist has explained to me many times that the chemotherapy options available won’t be very successful for my type of Sarcoma, however there is the option to try Immunotherapy. He has had the discussion with the Royal Marsden and they have seen some positive results with this line of treatment.

 

I however, recently received the devastating news that the drugs company will not fund immunotherapy as a treatment option for me. They have said that there are alternative (cheaper) routes I could explore first… When we all know those options won’t be as successful or give me the greatest timeframe & I obviously want a lifetime and more with my little family. The treatment to self fund is £100,000.

 

I would be so forever grateful for any kind of help or donation to try get us to this goal & allow me to try this treatment to give me as long as I can or you never know, maybe even cure me.

 

Thank you,

 

Rach, David and Indie x