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Kathy's medical & wheelchair van ex

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Hi! My name is Kathy. I am a married 37 yrs and a mother of two children. I have a very special grandson named Zachary. .  He is 4 yrs old now.  He was born with only half a heart. . He struggled for 7 months before he received his new heart. He was with very low oxygen levels before he got his new heart. He also had his vocal cords damaged,  has a tracheostomy and cannot speak.  Zachary lives about an hour away from me. This is one of the reasons I need your help. 
had a stroke at the age of 43. I could not walk, talk, read, write...basically I needed to start over.  I fought for 3 months in a rehabilitation center and continue to fight. I have short term memory loss and never regained the use of my left arm. I ware braces on my legs.  I thought I was getting better then bam! In the hospital again for what we thought was another stroke.  Over and  over for the next 4 years I was in the hospital. I was sent to doctor after doctor. I was even told I was crazy and see a shrink!! 
I knew myself and my body. Something was very wrong. A friend recommended a neurologist. I saw him along with numerous MRI, X-rays and test results. He ran a few new tests. Spinal tap, special eye tests and blood tests. Finally he had an answer for me. I had MULTIPLE SCLEROSIS. Not only did I have MS but a very aggressive form of MS. I have been on three different therapy's  and now take Tysabri. It is an infusion that you get every month into your port in your chest. I get admitted to the short procedure, and for an hour get poison  into my body. It works like chemotherapy. It wipes out your immune system. Oh and did I mention it can kill you!!!  I'm only 55!! You can get an un-cure able brain infection.. This is my only option.
My husband is disabled. He can no longer help me transfer In and out of the car. I have an aide that helps me with my daily needs. That's my story in short. 
So the reason I need your help is MS means adaptation to your home. Ramps, chairlifts, bathroom modifications a van. A wheelchair van. It is very hard to impossible to go anywhere. Remember my special little grandson. I need to be able to get to his house see him. He has been in and out of the hospital with pneumonia. I need  to try to move on with my life as it has become. New challenges every day.  Getting help with medical expenses , modifications and being able to get a van would be a blessing. Please, if you can help with any donation, big or small I will be so appreciative. Thank you and God Bless. 
Kathy.
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    Organizer

    Kathleen Westermann
    Organizer
    Prospect Park, PA

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