I'm fighting for my life

Warrior Michal - a story of our little hero, son Michal

When a child comes to this world, he is bringing happiness and joy to

the family. The same was when our son Michal was born. Beautiful,

healthy child, first boy in our family.

Our joy didn't last too long, unfortunately after a happy first two

years without any problem suddenly your son started to have seizure

attacks. We were worried of course, but still with hope that it was

nothing too serious. There are many children in the world with

epilepsy. We can live a quiet, normal life.

Unfortunately Michal's seizures began to be very frequent and stronger

and stronger, his development slowed significantly. We knew something

was wrong but even then we weren't prepared for the diagnosis. Two

years ago our son was diagnosed with Batten CLN2, a fatal disease,

which many called as a children's dementia. The main symptoms from

which our son suffers are: lost in vision, our son had serious

mobility problems as well as with eating.

The illness is trying to take away all his skills and abilities, Our

son a few years ago was running and kicking a ball, today requires a

special wheelchair.

We were lucky that Michal had a chance for treatment, which had just

been approved, The treatment relies on systemic infusions to the

brain, lasting 4 hours each. Every two weeks we need to take our son

to London's Children hospital for the transfusions.

Without the Brineura enzyme therapy - Michal had minimal chance to

live to his 10th birthday. The treatment did not stop or cure the

illness but significantly slowed the progress.

Aside from the treatment, Michal requires regular physiotherapy and

specialist equipment. Not everything is covered by insurance or NHS,

Michal is attending special private therapies, helping him to keep and

improve his mobility abilities as long as it is possible- Michal is a

fighter. He exercises with passion - he really wants to walk again and

that can be seen in every therapy session. He never cries or declines

to participate.

Unfortunately these sessions are not cheap and our funds and savings

we had are used. The travel cost to London every two weeks for the

infusions, travel for the mobility therapies and sessions itself are a

huge financial burden for our family. Apart Michal, in the family are

also two Michal older sisters,

Due Michal's illness, mum is unable to work - Michal requires 24/7

care. More about everyday Michal and his family fight for every single

day can be found on the website " I am fighting fir my life".

We are asking people with good hearts for helping us to raise money to

help our son fight for his life, day by day. To be able to do it we

desperately need money for the regular transport and the physiotherapy

session.

Every donation, even the smallest one, makes a huge difference for us.

Every single penny raised will help us to continue tge therapy and

allow us to be able to travel for the enzyme treatments to London-

which are crucial for our son. The only chance and hope for our hero.

Thank you