As Ty's mother I am humbly asking for assistance with the best care possible at this time. As many people know he has been in and out of the hospital since January. At the end of January 2023 we discovered something wasn’t right with Ty’s heart after a fever and bradycardia presented itself suddenly. There was a previous episode in 11/2021, however it was brushed off as COVID. Also, there were multiple times that he was misdiagnosed prior to coming to Atlanta for care. We went from watching him play basketball every week and presuming he was a relatively healthy, happy boy to being admitted to Egleston and realizing he is actually a sick but still happy young boy. Ty had a pacemaker/ICD placed on 2/8/2023 that has drastically helped with the junctional bradycardia and V-tach but we are struggling hard with persistent symptomatic a-fib. After genetic testing and waiting 2 months for results we found out yesterday that Ty has a genetic mutation of RBM 20. It was not the expected diagnosis for his doctors or us. I ask that if you have any close connection with Ty or myself that you prepare yourself before you look up that mutation. There are some pros to the other channel issues with his heart as it’s not allowing the arrythmias to get to his ventricles at this point. So in some sense the bottom of his heart is protected at this time. However, the truth is that there isn’t a lot known about this diagnosis and it appears Ty has a mutation of this gene that may not have been seen before. His surgeon and team are incredibly brilliant. Some of the finest might I add that have graduated from Stanford and they are struggling to get his treatment right. Needless to say medical bill co-pays, medicines, traveling, parking fees, food, genetic testing for the other kids due to a familial possibilty of 30-50% and managing 3 other children at home 2 hours away without being able to work full time like usual gets expensive. We are blessed that Ty has great insurance but most medicines that are required to save your life are insanely expensive even with insurance. Ty is currently taking 2 heart medicines (Sotalol 120 mg and Norpace 100 mg) both three times daily and a blood thinner. The blood thinner alone appears it is over $300 a month. I am unsure of what insurance will cover until it has to be filled when we leave the hospital. The heart medicine has been changed for the 4th time in 2 months in an attempt to control his arrhythmias as the others have failed. For 2 months I have been working and using my pay along with savings to maintain. However, savings are becoming slim after 2 months of admission after admission to Atlanta. Until Ty is stable I am not able to work full time but I do go when he is stable and I am able. I leave him, not often but more than I wish to but the reality is life doesn't keep going and bills keep coming. Leaving my sick child to care for others in an ER eats at me in a way I can't explain in words. I am still researching as everything is very fresh and new at this time. There appears to be gene therapy and some specialists in Maryland for this genetic mutation. I’m willing to go wherever and do whatever is needed to help him. I’m not quite sure what all that will be but I do know for now we are in Atlanta with no definitive date to be discharged. My hope is that anything donated will help cover any copays, gas, therapy, medicine, bills, time off work and anything else related to caring for him during this time and in the near future.