Hello and thank you for taking the time
to read about my child facing what no
child should have to go through.
Tyler was born Christmas Day 16 years
ago and has two siblings.
I’d had a test in pregnancy and found out Tyler had the gene for Huntington’s
disease inherited from Tyler’s Dad.
Not only that but a higher level
which indicated Tyler will start suffering
in teen years. I was told juvenile
Huntington’s disease and I prayed
everyday the results were wrong.
Sadly two years ago at aged 14 Tyler
started suffering with his memory and
more recently with swallowing, which
are both signs the disease is progressing.
We spend many hours at
different hospitals appointments.
Tyler’s health is deteriorating at such a
young age to a life shortening disease
which will take his life twice.
The first time it’ll take away Tyler’s
independence and in a few years Tyler’s
life will be taken way too soon.
Tyler is so outgoing and has a thirst for
life and wrote a bucket list to try and
complete.
(Tyler knows not all things on the list will happen but wanted to give everything a
try.)
Huntingtons disease is a very painful
disease that strips away everything from walking/talking etc. It breaks my heart
thinking what Tyler has to face but I
promised Tyler’s dad whom sadly past
away in 2012 I’d do my best for Tyler.
So here I am trying to raise funds to
complete the bucket list which Tyler’s
wrote many things on listed below.
adventure holidays (Africa/Florida.)
skydiving.
PC gaming set up.
horse riding on the beach.
plane de-icing.
go karting.
Festival tickets.
scuba diving.
Glamping.
bungee jumping.
fields to metal detect in.
Drums to play.
Paint balling.
complete climbing courses.
ride on a Harley Davidson. (This wish has
come true with multiple offers. Thank you)
Updated list
(Tylers extended his wishes now his
seen how wonderful and nice people are.
A large swimming pool.
learn to drive.
A day working with animals in the zoo.
Day trips.
Theme parks.
To see northern lights.
visit Stonehenge.
visit an Elephant sanctuary.
pizza with Lewis Capaldi & stormzie.
sailing
quad biking
zip wiring.
There seems many but even if we only get afew things ticked off it’ll make a huge
difference.) updated 17/06/2020
the list grows daily and we have started
the first climbing course and completed
an archery course.
Your donation of any amount no matter how small would make such a
difference in Tylers life and will help to
complete the dreams and wishes of a
teeanager.
Thank you for reading.
love Elaine
Tylers mum.