Hello friends,

My name is Kylie Mahony and I have two beautiful daughters, Elora (4) and Primrose (2). Both are IVF miracle babies and very much loved and cherished children. I feel lucky every day to be their mama!

Primrose is an absolute darling of a child. She is sweet-hearted, kind, empathetic and so bright! She was speaking fluently well before her second birthday, and began violin lessons at two. She has mastered letters and numbers and is learning to read. She is cute, funny and absolutely charming. She is the joy of everyone who knows her!

Primrose was diagnosed with AML leukaemia in mid-February this year. This was a terrible shock to everyone. Up until now she has been a perfectly healthy child. Since her diagnosis, Primrose has undergone three rounds of chemotherapy. She has lived at the Adelaide Women's and Children's Hospital in South Australia almost continuously for the past five months.

Chemotherapy is a very traumatic and painful treatment. Primrose has suffered so much - sickness, terrible mouth ulcers and constant high fevers, just to mention a little of what she's been through. She was very traumatised just by being in the hospital environment, especially at first. Being forced into painful and scary procedures was so terrifying for her. The first night we were in the hospital, I cuddled her in her bed and she clung tight to me, saying "Mama I need BIG cuddles!" That night, I sang her every song I know while holding my darling in my arms as tight as possible. I wish my love for her alone were enough to bring her back to health.

Primrose has incredible resilience and adores life! After a while, she learned to find joy in her hospital life and starting bringing joy to others. She is the delight of all who meet her at the hospital, running up and down the corridor, greeting everyone and making them laugh at the adorable and whimsical things she has to say. Every morning, she looks out of the hospital window and says with a smile "today is a BEAUTIFUL day!"

Primrose needs a bone marrow transplant to save her life - chemotherapy alone will not cure her. Despite three changes to Primrose's chemotherapy protocol, the type of AML Leukaemia she has has proved stubborn and elusive to fully treat. It keeps mutating to avoid the drugs she has received.

For a bone marrow transplant to be successful, chemotherapy needs to bring down the cancer cells in her blood to less than 5% in her body. But so far after three rounds, she still has 8-10% cancer cells. With this amount of leukaemia, a bone marrow transplant may fail and it's likely the transplant option will be refused by the transplant hospital.

We were hoping to travel to Sydney for the bone marrow transplant after her third round of chemotherapy, but her doctor is now saying it looks like this round has failed to do what it needs to as well. In our last meeting together, he discussed withdrawing treatment and palliative care. As Primrose's loving mother, I am heartbroken and scared. I just cannot accept that we are at the end of possible treatments.

If we are able to travel to Sydney for the bone marrow transplant, it will be very hard on Primrose, and the procedure has many serious risks of complications. My little family and I will need to uproot our lives and live in Sydney for 4-6 months. As a single mother on a low income, this is very scary for me - I will need to give up my work pretty much entirely while we are away, as I am a violin teacher and working remotely isn't an option for most of my students.

I am now starting to look at overseas treatments in the hope that there is a cure for Posie somewhere in the world. Please help make this search a viable option for a cure. I have never in my life asked for financial help for anything, but I am overcoming my natural hesitation because nothing is more important than saving my baby's life.

Primrose wants to live! She absolutely embraces life and I know she has beautiful things to give to the world. She is such a treasure to everyone who knows her - a truly remarkable child with a beautiful nature and incredible strength and resilience. Please help me so that money is not a barrier to finding a cure for her!