TWO SALTY OKES
Donation protected
Hello,
Did you know that there is a high probability that if you’re a Black Indigenous Person of Color - (BIPOC) Your child’s mutations may not be detected on the new born screen?!
This is the initial test administered by hospitals across the states. This test is the first determinant screen your child receives and if their mutations are not on the testing to begin with then there’s a possibility they may be delayed with diagnosis causing unnecessary trauma to families across this nation!
My name is Rena Barrow and I am the owner of Two Salty Okes. Two Salty Okes was created to raise awareness of Cystic Fibrosis. Cystic Fibrosis is not common amongst the African American community. To have Cystic Fibrosis you need to inherit a mutation from each parent.
There is a need on a larger scale to raise awareness for the BIPOC community particularly in the areas of research and each states newborn screen processes. There’s a need to educate the Hospitals, Doctors and medical staff on what to look for particularly for the CF Bipoc communities.
Most times African American patients are under and misdiagnosed all the way to the point of severe malnourishment and leading up to organ failure.
I would like to further my mission and educate the world because I do not want any other family regardless of race to suffer as we have two times. If I could help any one person or family to not suffer as we have for generations to come then as we suffered was totally worth it.
I have a great vision ahead but sadly - I can’t Fund it alone and so that is why I’m asking for the public’s help!
Please read more of my CF story at:
https://www.cff.org/community-posts/2023-08/creating-change-bipoc-people-cf?fbclid=PAAaam-HZ8GBER-OEx1cgoC6qNCd5-eEAhILJBjB8aaEmJEpOvDiYWsX-XH2A_aem_ASR8E47eUG-bXbzua2okwsY0pJXKJ-wTS1zYoQtEF_ZY5t5ioizJauLSFsN3hou7S4Q
You can also listen to this podcast that I recently done with The Bonnell Foundation :
EVERY BIT HELPS!!!!
THANK YOU SO MUCH!
Organizer
Rena Barrow
Organizer
Alpharetta, GA