Hi, I’m Conor. I’m a dad to my little boy, Reggie.

Reggie has a rare condition called WT1, Denys-Drash Syndrome and Hypospadias. It affects his kidneys and means he’s living with CKD5 and needs dialysis. As well as malformation of the male external genitalia. He’s only little, but he’s already tougher than most adults I know. At the time of writing this, Reggie's had both his Kidneys removed and is awaiting his transplant.

Being his dad has changed everything for me. I’d give anything for him to have a normal, pain-free life. I’d even take his condition myself if I could.

This page isn’t really about me, but I need to explain what’s going on so people understand why I’m asking for help.

How We Got Here:

When Reggie came home from Great Ormond Street Hospital, I thought we’d pull together as parents. Instead, things fell apart. I was asked to leave.

I tried to get us professional help. Counselling, anything, but it wasn’t an option.

Four weeks after Reggie was discharged, I was out of the house. Then the CMS letters started turning up.

Since then, it’s been frequent hospital runs. Each trip costs about £69.50 plus a day’s lost wages. When Reggie’s in for a longer stay, five to seven days, that can wipe me out financially.

Before all this, I’d built my own small business from nothing back in 2018. No qualifications, just hard work. But when your kid’s in and out of the hospital, clients don’t wait around.

I’ve lost three retainer clients, a load of freelance work, and hours of editing and advertising jobs. Still, I wouldn’t change a thing. Reggie always comes first.

Here’s the reality:

Reggie’s main carer gets

I get:

100% of Reggie’s Disability support goes to one parent. CMS don’t take his condition into account. Citizens Advice told me they can’t help. DLA won’t speak to me because I’m not the mother.

To get any information about his allowance or support, I’d have to go to court and prove I care for him. Even though I already do, every time he’s with me.

Why I’m Doing This:

For the next few years, while Reggie’s on dialysis, I can’t see him as much as I’d like. I’d quit work tomorrow and be his full-time carer if I could. Right now, I just have to stay on standby. Ready to go whenever he’s rushed to the hospital or has appointments.

I started this page because I’ve hit a wall. The system isn’t built for dads in my position. There’s plenty of help for “families,” but when you’re a father trying to do right by your kid, you fall through the cracks.

This GoFundMe, along with other fundraiser pages, plus the videos I make on TikTok, YouTube, and Patreon, is my way of doing something for Reggie. The money raised will go toward travel, food and building a future where he’s got every chance possible. Fixed ISA, Stocks and shares, as well as a business opportunity I am already creating for Reggie when he is older. If things had been treated fairly, I could have avoided this scenario completely. Plus, I don't think I'm built for other paid subscriptions.

If you get what I’m trying to do, thank you for reading. If not, that’s fine too. This is for Reggie. Always has been, always will be.

#RunForReggie

#TwoBeansDown

Thank you to those who gave me the courage to create this page.

A Quick Word About All This

I know putting your life online and asking for help can stir up mixed opinions. I’m not naive to that. I know how cruel or judgmental people can be, especially when they don’t understand the full story.

Yes, there will always be people who twist things, question motives, or think they’d handle it better. That’s fine. The truth is, the positives outweigh the negatives. Every share, message of support, or bit of advice from good people matters more than any noise in the background.

If I ever say or do something that isn’t in Reggie’s best interests, I’ll own it and take full responsibility. But right now, everything I’m doing, every post, every late night, every decision, is about doing what I can control to give him the best chance and letting go of the things I can’t.