We Educate, Support & Provide Funding for Multiple Sclerosis patients seeking to undertake HSCT treatment with a view to STOP their MS
Multiple sclerosis (MS) is an incurable disabling autoimmune disease damaging the central nervous system. Only 0.02% of people worldwide have been diagnosed with this disease to date. Just over 25 thousand of us live with this terrible & disabling disease in Australia today.
Current treatments in the form of Disease Modifying Drugs (DMD’s) available to MS patient in Australia, DO NOT stop but may slow the progression of disability.
Hematopoietic stem cell transplantation (HSCT) for MS, is the only treatment to date, proven to STOP progression of the disease @ a success rate of:
+85% for RRMS,
+70% for SPMS &
+65% for PPMS.
It’s extremely unfortunate that this treatment is and has been on trial in Australia for +10 years now, with the trial delivering positive results yet they continue not to permit/allow this treatment as an option for us MS sufferers, forcing us to seek and undergo treatment abroad with a view to halt the disease and get our life back.
I would like to think that the pharmaceutical companies making a staggering +$120 Million per month in Australia alone for MS drugs that are proven NOT TO STOP but possibly slow disease progression is not the key driver behind the lengthy trial period.
In February I stood tall in front of a sold out stopmsingwithme fundraiser event of +550 people, humbled, honoured and blessed to have such an amazing network of family & friends around me.
On that day, I vouched to get to Russia, get myself healthy and come back to support and give back the the entire community that supported me so passionately throughout my MS journey.
As I wait for COVID-19 to pass and for my treatment to commence I have spent the last couple of months planning to launch what will be a charity aimed at TRULY supporting those in need.
To support Multiple Sclerosis sufferers in understanding the disease and all available treatments available to them.
Educate, Support & Provide Funding for Multiple Sclerosis patients seeking to undertake HSCT treatment with a view to halt their MS
Please Help Our Cause
Your support and contribution will enable us to meet our goals in supporting & funding HSCT for people diagnosed with MS.
Together we can help people overcome this terrible disease and help them get their life back.
- Costanza De Ieso
- Val Mavroidakos
- Zed Mihajlovic
- Petrie Bernard