My mommy and daddy call me sweet, but I've also got a pinch of fight and a pinch of sass, which is a recipe for one awesome personality! This personality is going to get me through my lifetime of challenges, but I will continue to show the world what kind of a determined human being I strive to be. Since birth, I have been diagnosed with Waardenburg Syndrome, and because of this, I am profoundly deaf. This was a big surprise to my family, and it's been difficult coping with everything going on. My mommy and daddy have been taking me to many appointments since I arrived into this world, and it's only going to get busier.. and more expensive!
For those of you who do not know what Waardenburg Syndrome is, it's a skin, eye, and hair pigmentation disorder and gene mutation, which can also include multiple other symptoms such as wide-set eyes, flat nasal bridge, colon issues, joint issues, and lastly- deafness. Individuals with Waardenburg Syndrome can either have one, multiple, or all symptoms. It's such a broad spectrum, and a very rare syndrome to have. Only 1 in every 45,000 people have this syndrome, and God chose me to be the special recipient. I currently have some of these traits, but I'm still very young and more of these can develop as time goes on.
I am now a whopping 4 months old, and by the time I'm 7 months old, I'll finally have my ears turned on for the VERY FIRST TIME! The Dr.'s said I am the perfect candidate to receive bilateral cochlear implants, and I'm SO excited to finally be able to hear the world around me, just like you do! Having cochlear implants will allow me to socially interact with others, help me do well in school, and simply enjoy the sounds of life!
Cochlear implantation surgery isn't the only surgery I will be needing in the near future. I will be receiving eye correction surgery due to the inner corners of my eyelids drooping into the Iris and Pupils on both eyes. This can be a dangerous thing if left alone, and can potentially cause blindness if it's not corrected at an early age. On top of cochlear implants and eye surgery, I will also be needing nasal reconstruction surgery to fix my nasal canals to be able to breath normally! Sounds like a lot, doesn't it? It is, but it's ok... I'm not afraid! I've got a big fan club that's rooting me on!
As you can already see, there's big expenses coming our way, and my family would very much appreciate any help you can provide us with! My journey has just begun, and although we are extremely blessed that I'm able to hear one day, my privilege is becoming an expense my mommy and daddy need help with.
* If you're wanting to donate- WE APPRECIATE IT! * If you cannot donate, but can pray for us- WE APPRECIATE IT! * Or if you just want to write some kind words - WE APPRECIATE IT!
We are grateful for YOU and your gracious generosity with helping me reach my goal to turning on my ears!