Tunes For Barrett 2020
Donation protected
As many of you may already know Barrett Kammerer (age 15) was born with an A-Typical Rett Syndrome called CDKL5 variant.
Rett Syndrome (RTT) is a unique neuro-developmental disorder which begins to show its effects in infancy or early childhood. It is seen almost exclusively in females, although it can occur rarely in boys. The disorder severely disrupts the development of gross and fine motor skills as well as robbing girls of their ability to speak and communicate with the outside world. Seizures and breathing problems can also be prevailing symptoms.
It affects every aspect of a family’s life, as these girls are dependent upon others for almost everything, from helping feed them to helping them get around, bathing, and most other daily tasks that most of us take for granted.
Funds have gone to help her with her handicap vehicle, therapy equipment, custom handicapped accessible shower, ramps and many other things she needs that are special.
This year we are raising money to take her on a vacation this summer to be the featured guest at this year's Casting4A Cure event in Victor, Idaho this supports Rett Syndrome research.
It’s never ending so it’s always changing. This year's specifics are to get her to C4C in Victor, Idaho with a support crew. We need to rent an RV or big bus and stay in an accessible house with nursing support for 10 days. It’s a big trip!! She will be the focus of the event! They have been asking her to come for years.
Rett Syndrome (RTT) is a unique neuro-developmental disorder which begins to show its effects in infancy or early childhood. It is seen almost exclusively in females, although it can occur rarely in boys. The disorder severely disrupts the development of gross and fine motor skills as well as robbing girls of their ability to speak and communicate with the outside world. Seizures and breathing problems can also be prevailing symptoms.
It affects every aspect of a family’s life, as these girls are dependent upon others for almost everything, from helping feed them to helping them get around, bathing, and most other daily tasks that most of us take for granted.
Funds have gone to help her with her handicap vehicle, therapy equipment, custom handicapped accessible shower, ramps and many other things she needs that are special.
This year we are raising money to take her on a vacation this summer to be the featured guest at this year's Casting4A Cure event in Victor, Idaho this supports Rett Syndrome research.
It’s never ending so it’s always changing. This year's specifics are to get her to C4C in Victor, Idaho with a support crew. We need to rent an RV or big bus and stay in an accessible house with nursing support for 10 days. It’s a big trip!! She will be the focus of the event! They have been asking her to come for years.
Organizer and beneficiary
Ed Kammerer
Organizer
Denver, CO
Ed and Yvette Kammerer
Beneficiary
