Donation protected
Meet my brother Johnny, his wife Nina and their adorable son Sammy.
Please consider joining us in supporting my brother Johnny on his journey to complete healing. He has Chronic Granulomatous Disease (CGD). CGD is a rare genetic primary immunodeficiency. His immune system isn’t able to function properly making him susceptible to life threatening bacterial and fungal infections. It also causes an increase of inflammation throughout the body.
Johnny has had CGD since birth and has had many serious illnesses and hospitalizations due to the disease. These infections as well as the inflammation caused by the disease have affected his lungs. Because of this his doctors feel it is time to do a bone marrow transplant (BMT). With the bone marrow transplant Johnny will be completely cured of his disease. Our hope is his lungs will improve also with the decrease in inflammation.
Because the disease is rare, Johnny is followed by a specialized group of physicians at the National Institute of Health (NIH) in Bethesda Maryland. This is where the BMT will take place.
The journey starts in March. Johnny will be admitted and undergo a conditioning regimen to wipe out his immune system. It’s an intense process that will make him feel very sick. On March 22nd Johnny will receive his donor cells. He will then be in isolation at the hospital until the bone marrow has engrafted. Once his immune system is functioning enough he will be released from the hospital. He will then need to remain close to NIH for a period of time.
The BMT process will take approximately 4 months. During this time he will need to take a medical leave of absence from work. He is also required to have a care taker with him at all times. His wife, Nina, and our parents, Dave and Linda Triano, will take turns being at NIH with him. The BMT procedure itself is covered by NIH but housing, flights and other expenses of having two households will not be. The entire process will end up costing Johnny and Nina close to $50,000. He is the sole provider for his family and this is going to be a huge financial burden for them. Another extremely hard part of this is with my nephew, Sammy, who will not be able to see his Daddy. Johnny can’t be around any children due to his low immunity during the treatment so Sammy will be living with my family during the BMT. Nina needs to travel back and forth as she can’t be away from Sammy for the entire time. They will need to purchase multiple flights for her and our parents.
Please join us on this journey and consider a monetary or other donation to help them during this time. We would also appreciate all of you keeping Johnny in your prayers. The BMT is a very scary procedure and nothing is guaranteed. We have put our faith in Christ and hope this is the miracle we have been praying for his entire life. You can follow his journey on Facebook at Johnny’s BMT Journey.
Thank you!
Please consider joining us in supporting my brother Johnny on his journey to complete healing. He has Chronic Granulomatous Disease (CGD). CGD is a rare genetic primary immunodeficiency. His immune system isn’t able to function properly making him susceptible to life threatening bacterial and fungal infections. It also causes an increase of inflammation throughout the body.
Johnny has had CGD since birth and has had many serious illnesses and hospitalizations due to the disease. These infections as well as the inflammation caused by the disease have affected his lungs. Because of this his doctors feel it is time to do a bone marrow transplant (BMT). With the bone marrow transplant Johnny will be completely cured of his disease. Our hope is his lungs will improve also with the decrease in inflammation.
Because the disease is rare, Johnny is followed by a specialized group of physicians at the National Institute of Health (NIH) in Bethesda Maryland. This is where the BMT will take place.
The journey starts in March. Johnny will be admitted and undergo a conditioning regimen to wipe out his immune system. It’s an intense process that will make him feel very sick. On March 22nd Johnny will receive his donor cells. He will then be in isolation at the hospital until the bone marrow has engrafted. Once his immune system is functioning enough he will be released from the hospital. He will then need to remain close to NIH for a period of time.
The BMT process will take approximately 4 months. During this time he will need to take a medical leave of absence from work. He is also required to have a care taker with him at all times. His wife, Nina, and our parents, Dave and Linda Triano, will take turns being at NIH with him. The BMT procedure itself is covered by NIH but housing, flights and other expenses of having two households will not be. The entire process will end up costing Johnny and Nina close to $50,000. He is the sole provider for his family and this is going to be a huge financial burden for them. Another extremely hard part of this is with my nephew, Sammy, who will not be able to see his Daddy. Johnny can’t be around any children due to his low immunity during the treatment so Sammy will be living with my family during the BMT. Nina needs to travel back and forth as she can’t be away from Sammy for the entire time. They will need to purchase multiple flights for her and our parents.
Please join us on this journey and consider a monetary or other donation to help them during this time. We would also appreciate all of you keeping Johnny in your prayers. The BMT is a very scary procedure and nothing is guaranteed. We have put our faith in Christ and hope this is the miracle we have been praying for his entire life. You can follow his journey on Facebook at Johnny’s BMT Journey.
Thank you!
Organizer and beneficiary
Nicole Triano Alexander
Organizer
El Dorado Hills, CA
Nina Triano
Beneficiary