Help eloras epilepsy journey

Hello my name is Marina. I am a single mother of a very lively 4yr old named Elora. About a year ago Elora was diagnosed with epilepsy and I had to stop working due to her daily seizures. I thought this was going to be a quick fix,but unfortunately it’s turned out to be the opposite. I had thought I had this handled, but things are getting rough not being able to work and having to pay out of pocket for her emergency medicine at times. We’ve recently found out that one of the new medication trials they want to do for elora will not be covered by insurance and we will have to pay out of pocket for this very expensive medication , which is and will be very difficult considering I can’t work because she is having numerous seizures a day. Although it is very hard for me to ask for help I think it’s time I put my pride aside and ask for the help my daughter and I need to pay for this medication monthly.