- V
Troy was born 10 weeks prematurely and weighed only 4.5 pounds. We spent 43 days in the NICU. About a week after his birth we were told he had brain bleeds and Periventricular Leukomalacia which is injury to the brain that could potentially affect his mobility.
He fell behind pretty quickly in his development and started therapies early on in his life. He was diagnosed around 9 months old with spastic quadriplegic cerebral palsy. This means that all four of his limb muscles get very tight and prevent him from having good balance, coordination, and control. His core is affected with low tone. At two years old he still cannot sit, crawl, stand, or walk without assistance. His eyes are also affected by this and will likely need surgery for his cross-eye in the future. He goes to therapy three times a week and will soon start getting medication to help reduce the tone in his body.
Troy has already been denied a gait trainer by Insurance because they decided that the stander they bought him was comparable to a gait trainer (one is for standing and one is for walking). We have been blessed enough to have one on loan from our therapist. Even after funding from assistance programs and insurance, the expenses of having a special needs baby are starting to pile on and they are still looming in our future. Positioning equipment, shoes (he will need specially fit shoes because of his braces, otherwise his normal shoes get worn out in about 7 days from being dragged),making our home and vehicles accessible for him, intensive therapies, possible surgeries, are all things as parents we want to be able to provide for him.
Our wish is that one day Troy is able to walk, run, and play as every child should.
We are starting this go fund me to raise money towards the gift of mobility for Troy.
Thank you so much for being a part of our village!
He fell behind pretty quickly in his development and started therapies early on in his life. He was diagnosed around 9 months old with spastic quadriplegic cerebral palsy. This means that all four of his limb muscles get very tight and prevent him from having good balance, coordination, and control. His core is affected with low tone. At two years old he still cannot sit, crawl, stand, or walk without assistance. His eyes are also affected by this and will likely need surgery for his cross-eye in the future. He goes to therapy three times a week and will soon start getting medication to help reduce the tone in his body.
Troy has already been denied a gait trainer by Insurance because they decided that the stander they bought him was comparable to a gait trainer (one is for standing and one is for walking). We have been blessed enough to have one on loan from our therapist. Even after funding from assistance programs and insurance, the expenses of having a special needs baby are starting to pile on and they are still looming in our future. Positioning equipment, shoes (he will need specially fit shoes because of his braces, otherwise his normal shoes get worn out in about 7 days from being dragged),making our home and vehicles accessible for him, intensive therapies, possible surgeries, are all things as parents we want to be able to provide for him.
Our wish is that one day Troy is able to walk, run, and play as every child should.
We are starting this go fund me to raise money towards the gift of mobility for Troy.
Thank you so much for being a part of our village!

