Hello, my name is Amanda Medeiros, I'm Brazilian and I live in Utah.

My 27-year-old brother recently received a life-changing diagnosis: cystic fibrosis, a rare genetic disease discovered late in life. This debilitating condition dramatically reduces life expectancy due to severe lung complications and other systemic problems. Today, he has 74% lung capacity—and this number is expected to decrease over time. He also faces near-total pancreatic insufficiency, which causes intense gastrointestinal pain and daily difficulties.

There's a revolutionary drug called Trixacar/Trikafta that could change everything. It acts as a "near-cure": it reverses lung deterioration, significantly increases life expectancy, and alleviates some of the symptoms that plague him. For him, it represents a chance to live with dignity and have a future.

Unfortunately, Trixacar has a variable cost in dollars and is very prohibitive: around R$33,000 per month (US$5,954). And the hardest part is that my brother is not eligible for it through the SUS (Brazilian Unified Health System) because he has an extremely rare genetic mutation that is outside the coverage protocols.

To legally request Trikafta, he will first need to present tests demonstrating clinical and laboratory improvement after at least three months of treatment, Therefore, the goal of this campaign is to raise funds to purchase the first three boxes of the medication and legal fees ( US$1.444- US$1.624) which total approximately US$19.498. essential amounts to prove Trixacar's effectiveness in his case. and then he will be able to file a lawsuit to get the medicine for free through the health system

I would appreciate anyone who could help by sharing or donating any amount.

His Instagram: @jdmdsz

My Instagram: @amedeiross_