Tristan's Chest Fund
Donation protected
Tristan's story began in June of 2012, 10 weeks before it should have. He suffered multiple birth defects such as TEF (tracheo esophageal fistula... the stomach and esophagus were not attached ) and single kidney. He has VATER syndrome as a result. His first surgery was at 2 days old and 30 weeks gestational age.
Tristan spent most of his first year in hospital with mutiple complications. After many episodes of aspiration and severe reflux, a nissen fundopication and gastronomy were performed to save his life. And it did many times over. With gastrointestinal problems comes a host of medical difficulties and he has experienced many of them personally. At one point even a life threatening diagnosis of Cdif and Rotavirus imediately after a double hernia surgery.
Tristan gets hospitalized often if he get sick. He just isn't strong anough to handle the stress of sickness yet. He is getting healthier over time. In 2014 he has received several new additions to his challenges. Sensory processing disorder, failure to thrive, feeding disorder, Asthma, a heart murmur, pectus carinatum, infantile scoliosis, and finaly Austism.
Our whole family has suffered and cheered right along with Tristan through is trials and triumphs. His father finished his degree but has not been able to begin his career as a special needs teacher due to the demands of constant hospitalizations, multiple doctor appointments, therapies, and more that Tristan requires. His mommy has quit working to be a fully time caretaker as Tristan is safer at home than in daycare. Obviously, surviving on one income is difficult but not impossible. We have made ends meet with the help of family and friends so far.
The diagnosis pectus carinatum is what is brings us here today. This a rare chest wall deformity that begins as early as infancy and worsens with age, causing difficulty breathing, increased demand on the heart, and an obvious deformity that will continue to grow.
Insurance companies, his included, consider the non surgical treatment for this to be cosmetic. Completely ignoring the medical issues that arise as the deformity grows worse. There is a specialy designed brace that will correct this deformity as Tristan grows. He will wear a brace until he is full grown and of course he will need more than 1 in his life time. Right now, our concerns is to begin his treatment before his medical issues are made worse and his body becomes difformed. We are asking for help to purchase the brace he needs to avoid an open chest surgery later in life.
Please consider how you would feel if this were your child being denied help because of money. We don't ike asking for help this way but for our son, we say goodbye to any pride we have if it means he gets the help he needs.
All we can do now is pray, and we do it every day.
May you find strength in your faith what ever it may be. Even if you can't help, please forward this so that others may.
Thank you for taking the time to read our story.
For more information on the brace he needs, please see the link below
http://m.youtube.com/user/PectusServices
Tristan spent most of his first year in hospital with mutiple complications. After many episodes of aspiration and severe reflux, a nissen fundopication and gastronomy were performed to save his life. And it did many times over. With gastrointestinal problems comes a host of medical difficulties and he has experienced many of them personally. At one point even a life threatening diagnosis of Cdif and Rotavirus imediately after a double hernia surgery.
Tristan gets hospitalized often if he get sick. He just isn't strong anough to handle the stress of sickness yet. He is getting healthier over time. In 2014 he has received several new additions to his challenges. Sensory processing disorder, failure to thrive, feeding disorder, Asthma, a heart murmur, pectus carinatum, infantile scoliosis, and finaly Austism.
Our whole family has suffered and cheered right along with Tristan through is trials and triumphs. His father finished his degree but has not been able to begin his career as a special needs teacher due to the demands of constant hospitalizations, multiple doctor appointments, therapies, and more that Tristan requires. His mommy has quit working to be a fully time caretaker as Tristan is safer at home than in daycare. Obviously, surviving on one income is difficult but not impossible. We have made ends meet with the help of family and friends so far.
The diagnosis pectus carinatum is what is brings us here today. This a rare chest wall deformity that begins as early as infancy and worsens with age, causing difficulty breathing, increased demand on the heart, and an obvious deformity that will continue to grow.
Insurance companies, his included, consider the non surgical treatment for this to be cosmetic. Completely ignoring the medical issues that arise as the deformity grows worse. There is a specialy designed brace that will correct this deformity as Tristan grows. He will wear a brace until he is full grown and of course he will need more than 1 in his life time. Right now, our concerns is to begin his treatment before his medical issues are made worse and his body becomes difformed. We are asking for help to purchase the brace he needs to avoid an open chest surgery later in life.
Please consider how you would feel if this were your child being denied help because of money. We don't ike asking for help this way but for our son, we say goodbye to any pride we have if it means he gets the help he needs.
All we can do now is pray, and we do it every day.
May you find strength in your faith what ever it may be. Even if you can't help, please forward this so that others may.
Thank you for taking the time to read our story.
For more information on the brace he needs, please see the link below
http://m.youtube.com/user/PectusServices
Organizer
Danielle M. Drummond
Organizer
Fort Lauderdale, FL