Hi everyone. You're looking at our youngest little boy Tristan aka Mr.T. He's 20mths old now. Our little man has been diagnosed with Dravet Syndrome a rare & Severe form of Epilepsy. It's intractable, medications don't control his seizures for very long. We have gone through most meds at this stage. Tristans seizures have lasted up to 1hr. Tristan will get up to 20 seizures daily. Some days are better some worse. This won't get better without help. He's had to learn to walk & talk again as a result of his seizures. We're very lucky he recovered so well & is recieving Physio & Speach Language Therapy to help.
The medication Tristan needs to help his seizures remain under control & hopefully grow up to be a wonderful young man is in America as the laws are not permitting shipping or administering of this in Ireland YET. This is CBD OIL &THCA to control the remaining seizures. We are in consult with wonderful Neurologists there, willing to help Tristan. We just need a little help to get there. Daddy & Oscar who's 3 will be staying in Ireland to continue school. This fund will help cover Medical Costs & Living Expenses while we are in America. These are extensive. This fund could keep us there for up to 18months where we would hope to come back with the medications for Tristan at the end. Any donation you can give to help Tristan on his journey for a better life, a future & seizure control, we would be forever grateful.
You can also make a difference by signing Change.org for Whole Plant Medicine for Tristan & everone aswell.