Trinity is a 3-year-old girl from Tampa, Florida who was diagnosed with Neuroblastoma cancer in July 2018 at the age of 2.5; she also has Horner's syndrome and Harliquine syndrome, as well as a speech delay with a tongue tie.
What started out as a normal visit to the Pediatrician in early July 2018 quickly became every parent's worst nightmare. Within 16 days, what started as a small lump in her neck grew to become a solid mass roughly the size of a baseball. With how quickly the mass grew, the local children's hospital knew they needed to do a rush CT and biopsy. The results confirmed the worst: the mass was a tumor and it was malignant. Because of the location of Trinity’s Neuroblastoma cancer, it is inoperable.
Trinity has had rounds of Chemotherapy, bone marrow biopsy, surgery to have a Broviac line placed, CT scans, MIBG scans, X-rays, surgery to remove her Broviac (as it kept malfunctioning and getting infected), tons of lab work, and more.
Trinity's most recent CT and MIBG (full body scan, with radioactive dye injected via an IV) showed tumor and live cancer cells still present despite her treatments. Trinity’s current team of doctors is saying that she might always have cancer, which is NOT okay!
After much research and recommendations, the next step is to get Trinity to Michigan. Michigan has a neuroblastoma specialist that will hopefully be able to give Trinity's parents a treatment plan that will lead Trinity to become 100% cancer free--and allow her to ring the gold bell!
The fight for Trinity will be a costly one, the specialist charges $700 for a 1-hour consultation right off the bat.
Any treatment Trinity gets will also come out of pocket as her insurance will not cover out of network. In addition, Skyla and Lou will also have the costs of flights, hotels, rental cars, and food on top of all of their monthly bills and the stress of taking care of their other two young daughters.
Please, please, please help us ensure that Trinity gets the care she needs to be cancer free!
Lou and Skyla work very hard, but practically ANY of us would need help for the costly fight of saving their child’s life. Trinity’s fight with childhood cancer is brutal, long and relentless. She has a long road ahead and so does her family. Please help ease the financial stress for this beautiful family. And if you can't donate, please send a prayer. All help and prayers will be greatly appreciated.
Any additional funds will go directly to mounting medical bills and childcare costs for her siblings.
With sincere gratitude and thanks,
The Trinity Tough Team
We are #TrinityTough and we fight together!
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