Treatment for Knoa
Donation protected
Update: please feel free to share this page and or treatment for Knoa fundraiser page on Facebook. Thank you for all the prayers and support.
Update: Phoenix is no longer able to be Knoa’s Bone Marrow Donor due to him having the same markers on his chromosomes. Meaning he may in time develop Aplastic Anemia as he gets older.
My 6 year old son Knoa (pronounced Noah),was diagnosed with Aplastic Anemia, after developing bruising on various parts of his body, bloody gums, fevers and chills, lost of appetite, as well as bloody urine. His body was almost completely depleted of precious blood and platelets due to the bloody urine and various bruising, the normal blood cells that would / should be present weren’t because his bone marrow was/is not producing those valuable cells. Knoa takes platelets and whole blood roughly twice a week since he’s been home. Before that it was everyday until his body was stable to go a couple of days without needing.
Aplastic Anemia is a condition that occurs when your body stops producing enough new blood cells. Aplastic anemia leaves you feeling fatigued and with a higher risk of infections and uncontrolled bleeding.
A rare and serious condition, aplastic anemia can develop at any age. Aplastic anemia may occur suddenly, or it can occur slowly and get worse over a long period of time. Treatment for aplastic anemia may include medications, blood transfusions or a stem cell transplant, also known as a bone marrow transplant. Aplastic anemia can progress slowly over weeks or months, or it may come on suddenly. The illness may be brief, or it may become chronic. Aplastic anemia can be very severe and even fatal.
Treatment options include, but are not limited to the following:
*Stem Cell (Bone Marrow) Transplant: At present, this is the only cure for aplastic anemia. Bone marrow transplant involves the replacement of diseased bone marrow with another person’s healthy bone marrow. Unfortunately it may not be an option for everyone.
*Immunosuppressive Therapy: This is the standard drug therapy for aplastic anemia. It is based on the theory that aplastic anemia is caused by the immune system reacting against the bone marrow. Therefore, immunosuppressive drugs “put down” the immune response and allow the bone marrow to make blood again. The drugs used, anti-thymocyte globulin (ATG) and cyclosporine (CsA), may also have other effects that allow the bone marrow to make blood effectively again. ATG/CsA therapy for aplastic anemia is not a fast process. It can take three to six months for the treatment to have an effect. During that time, your child will need frequent supportive care, such as red blood cell or platelet transfusions and antibiotics. Children with aplastic anemia treated with immunosuppressive therapy also need life-long follow-up care from a hematologist.
*Supportive Care: In addition to treatment, supportive care helps the symptoms of aplastic anemia (fatigue, bleeding, infections, etc.). Examples include blood transfusion (both red cells and platelets), preventative antibiotic therapy, medications that stimulate the body to make more white blood cells, and behavioral interventions like thorough hand washing and avoiding large crowds or people who are known to have fevers or illness.
This campaign is to raise money for Knoa’s medical care and treatment. Knoa’s case is very sever and since being admitted to Cohen’s Children’s Medical Center, he has had several platelet and blood transfusions. He is currently taking to medications to prevent him from getting infections while he waits for his chemotherapy and bone marrow transpant.
Out of our other 5 children, we were fortunate to have 1 as a donor match for Knoa, and that is our youngest, Phoenix, who is 3 years old.
We just want for our son, Knoa, to get better so he can come home, his siblings and family really love and miss him. Since being hospitalized Knoa and I have been separated from our family, due to the high possiblity of passing germs from them to him. My husband and I both work full time to care for your family, and I have all of our family under my insurance. The road ahead is going to be a long one, both emotionally and financially.
For more information about Aplastic Anemia go to http://www.aamds.org/
#treatmentforKnoa #knoathewarrior #knoaswarriors
Update: Phoenix is no longer able to be Knoa’s Bone Marrow Donor due to him having the same markers on his chromosomes. Meaning he may in time develop Aplastic Anemia as he gets older.
My 6 year old son Knoa (pronounced Noah),was diagnosed with Aplastic Anemia, after developing bruising on various parts of his body, bloody gums, fevers and chills, lost of appetite, as well as bloody urine. His body was almost completely depleted of precious blood and platelets due to the bloody urine and various bruising, the normal blood cells that would / should be present weren’t because his bone marrow was/is not producing those valuable cells. Knoa takes platelets and whole blood roughly twice a week since he’s been home. Before that it was everyday until his body was stable to go a couple of days without needing.
Aplastic Anemia is a condition that occurs when your body stops producing enough new blood cells. Aplastic anemia leaves you feeling fatigued and with a higher risk of infections and uncontrolled bleeding.
A rare and serious condition, aplastic anemia can develop at any age. Aplastic anemia may occur suddenly, or it can occur slowly and get worse over a long period of time. Treatment for aplastic anemia may include medications, blood transfusions or a stem cell transplant, also known as a bone marrow transplant. Aplastic anemia can progress slowly over weeks or months, or it may come on suddenly. The illness may be brief, or it may become chronic. Aplastic anemia can be very severe and even fatal.
Treatment options include, but are not limited to the following:
*Stem Cell (Bone Marrow) Transplant: At present, this is the only cure for aplastic anemia. Bone marrow transplant involves the replacement of diseased bone marrow with another person’s healthy bone marrow. Unfortunately it may not be an option for everyone.
*Immunosuppressive Therapy: This is the standard drug therapy for aplastic anemia. It is based on the theory that aplastic anemia is caused by the immune system reacting against the bone marrow. Therefore, immunosuppressive drugs “put down” the immune response and allow the bone marrow to make blood again. The drugs used, anti-thymocyte globulin (ATG) and cyclosporine (CsA), may also have other effects that allow the bone marrow to make blood effectively again. ATG/CsA therapy for aplastic anemia is not a fast process. It can take three to six months for the treatment to have an effect. During that time, your child will need frequent supportive care, such as red blood cell or platelet transfusions and antibiotics. Children with aplastic anemia treated with immunosuppressive therapy also need life-long follow-up care from a hematologist.
*Supportive Care: In addition to treatment, supportive care helps the symptoms of aplastic anemia (fatigue, bleeding, infections, etc.). Examples include blood transfusion (both red cells and platelets), preventative antibiotic therapy, medications that stimulate the body to make more white blood cells, and behavioral interventions like thorough hand washing and avoiding large crowds or people who are known to have fevers or illness.
This campaign is to raise money for Knoa’s medical care and treatment. Knoa’s case is very sever and since being admitted to Cohen’s Children’s Medical Center, he has had several platelet and blood transfusions. He is currently taking to medications to prevent him from getting infections while he waits for his chemotherapy and bone marrow transpant.
Out of our other 5 children, we were fortunate to have 1 as a donor match for Knoa, and that is our youngest, Phoenix, who is 3 years old.
We just want for our son, Knoa, to get better so he can come home, his siblings and family really love and miss him. Since being hospitalized Knoa and I have been separated from our family, due to the high possiblity of passing germs from them to him. My husband and I both work full time to care for your family, and I have all of our family under my insurance. The road ahead is going to be a long one, both emotionally and financially.
For more information about Aplastic Anemia go to http://www.aamds.org/
#treatmentforKnoa #knoathewarrior #knoaswarriors
Organizer
Shaniqua Page-Allan
Organizer
Jamaica, NY