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Please help us lay Keaton to rest,God Bless All

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This is Keaton Crull’s mother. He was born June 18th 2021, He was born not moving not breathing, the doctors damaged his brain and also broke both of his arms. 2 weeks later they told us our son has SMA type zero. They told us our son would not live to be 1 month old.. HE IS 3 Months. They told us his arms would not heal because of SMA THEY HEALED.. So u can see that our baby boy is a fighter. His father and I have other kids as well and a home and other bills. We have let our home go and moved in with my sister so we can afford things and raise and support our other children. Also while saving money to try to put a down payment towards our sons Medicine. We will most likely never afford 2 million dollar drug. So because we live in a money hungry country and we r not rich our son might not ever have the chance to get this medicine. So our goal is to reach 40,000$ -80,000$ 

And give to the medicine company as a down payment and to see if that will help show them we’re not just asking for a handout that we care about our son getting this medicine. We currently have him on spinraza it slows down the muscle deterioration. Zolgensma is a gene therapy which will replace his genes so the muscles that he does have  can become stronger. If our son does not make it the money we raised on here will be used for his funeral and the rest will be donated to cure SMA organization. It is a organization that helps other families with SMA babies with toys, medical equipment and also to make SMA awareness to be known.  Please help us give our son this fight thanks to all who take the time to read and follow our story our son story is on ABC 57 news.. 

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Donations 

  • Anonymous
    • $50 
    • 2 mos
  • Mary Nolen
    • $25 
    • 2 yrs
  • Ana Ford
    • $100 
    • 2 yrs
  • Anonymous
    • $20 
    • 2 yrs
  • Andrew LaRue
    • $25 
    • 2 yrs
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Organizer

Jennifer Crull
Organizer
South Bend, IN

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