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Hi my name is Lotte
and nearly 2 years ago I made an awfull fall. I literally slipped at home and fall on my back and head. Bad luck they say or in dutch.....
An accident can be in a little corner...
I broke my tailbone and sustained a pretty bad concussion.
The doctors told me to just keep resting and it would go away. But it did not go away. The first 3 months I remember only being in bed most of the time. Trying to sleep. Which I could not because of my broken tailbone awfull pain and pressure in my head and neck. There was no way to comfartably lay down. So every night for that period of time I was walking through my house to just get through the nights..
I could hardly go out because of the light outside. So I walked a little bit through the garden early morning and when the sun was down. Only to have some movement. I have been taking care off by friends for that whole period of time which i am incredibly thankfull for I could not do anything. I was up for like 10 min in the beginning and had to lay down. Could only have someone around for 10 minutes and they had to leave. It been the hardest and loniest time of my life.
After that slowly very slowly there was some change.
But still 21 months after this accident I am very limited.
☆I Can,t have several people around me because my brain cant cope with to much noise, and get very overstimulated when people talk at the same time or laugh together. try to talk lauder than the other to be heard for example. I literally have to go and walk away if that happens imidiatly go home and rest.
☆Can't go engage and enjoy any social events which are so NORMAL for people to go to and not even think about it like a restaurant,terrace, anything fun most of you can do in your free time. because of all the noise, crowd of people. its the music, conversations glasses and couverts and plates making noise all of that at the same time is a thing my brain cant deal with. Instead i am at home resting ALONE. most of every single day and night. for the past nearly 2 years.
☆Can't cope wit public transportation or some busy place like train, bus, plane, boat, already the waiting time would exhaust me and take all the energie i have.
Even the supermarket or gasstation is still a challenge, imagine putting gas in your car and all the cars passing by, noises of the machines, beeps of the cash registers at the supermarket, people and kids shouting. i have custome made ear protection and noise cancelling headphones but still its very hard to cope with.
☆Can't be around kids which I love, because kids are extremely enthousiastic happy , can start screaming or jumping on you at any time which is normal off course. but for me it can be to overhelming to be abe to stay around. i have two little nieces and a little nephew and several friends with kids. its so so hard to not be able most of the time to enjoy their company without being exhausted after a short while and have to go and rest again.
☆Can't hang out normally with friends because it's to busy or to long. i only meet one friend at a time at my place or theirs or sometimes a calm place in nature. and still i have to rest before and after and still sometimes i have to cancel because i cant do it.
☆Can't go to a birthday, wedding, or other celebration( I missed out on a lot over this time) i feel extremely isolated from life like beeing on the side line as a prisoner in my own body.
☆ I have to rest after every thing do, which is several times a day to get through the day.
after typing this story, after starting the day dressing myself have breakfast, go to the supermarket, have a phone call at home etc.....
Can you imagine life life that???
I am in the middle of life and should be blossoming and enjoy it. I really want my ( quality of) life back. The best possible life i can get.
Beiing invisible ill with a condition like a brain injury that is not really accepted and considered an illness but which means my life ( and the life of many others) is very limited on a daily basis. Society and even science and doctor are still trying to wrap their head around it figuering it out.
That's why I did a lot of research on treatments.
This treatments helps you to train the neuro plasticity of the brain with all kinds of techniques so there will be new connections/ roads in the brain to funtion way better or hopefully normal again. Because since my fall the normal roads are broken.
I spoke to various people who did these treatments and there are a lot of people who truly have a way better life now or fully recovered.
I truly believe in this treatmensts, focused on recovery.
Depending on what amuount i can get together i will start as soon a s i can with one of those and off course keep you posted.
So after that i will be able to do all the things I mentioned above and enjoy life as it should be. I consider myself a strong and positive person and i believe i can make this happen.
Un fortunatly i cant d this alone.
Please if you want and can help me to reach by goal on my road to recovery.
Love Lotte
Organizer and beneficiary
Hendricus H
Beneficiary

