Donation protected
Hi beautiful humans, my name is Allianne and I am 20 years old.
I have 86° lumbar scoliosis and 53° cervical scoliosis, I have 15° Kyphosis and 25° Lordosis. My spine is also rotating inside of me. On top of that I have 39° pelvic incidence and I have a wedge shaped vertebrae in my lumbar spine.
Scoliosis is a sideways curvature of the spine, lordosis is an inward curvature and kyphosis is a forward rounding of the back also known as a ‘hunchback’.
However this doesn’t just affect my spine, but my whole entire body and mental health..
I was diagnosed at age 11 and still struggling, as it is getting worse every single day.
Each scan I get my spine has always worsen since the last. I have spent most of my childhood and teenage years in and out of doctor’s offices getting countless amounts of scans and tests done, sitting in front of many different doctors and surgeons and missing out on life because of this. My dream as a child was always to be a famous ballet dancer, but because of this awful condition I’m afraid I’ll never achieve my dreams.
This has stolen my childhood and my teenage years from me and I’m afraid it’s going to steal the rest of my life.
I’ve always wanted to be a mother someday, but I cannot have my own children because of this condition. I have nieces who want to play and friends who want to go out, but I always have to say no as it is either too risky or I am in too much pain.
It breaks my heart that I am only 20 and can’t do normal 20 year old things that everyone around me can do. It truly breaks my heart.
I have fell over onto my back many times because of how unbalanced my body is, in fact today I fell down the stairs and couldn’t move, it was so painful and frightening as being paralysed is very likely to happen to me. I now have a huge bruise on my back and am still crying while writing this.
I am so scared. Scared this is going to be the rest of my life. Scared that one day I won’t be able to move anymore. Scared I will never get the chance to truly enjoy life.
But after many hard painful years I have finally found a small bit of hope, a small light in this darkness. I have found a treatment to fix my body.
The body I have been at war with almost half my entire life now.
The treatment plan is a long and painful one, but I refuse to give up hope.
But unfortunately this treatment is in the UK and I am from Australia, so it is quite expensive. However this clinic is the only one to promise me results.
Everyday is getting harder and harder to do almost anything, even getting out of bed is a struggle. It is even difficult for me to breathe some days as my ribs are crushing into my lungs along with my other organs.
Everyday I cry. Everyday I am in excruciating pain.
I work as hard as I can to the best of my ability although it is extremely hard because of my condition, but I am trying my absolute best all to afford my treatment but even after working for three years, I still have no where near enough.
Each birthday I wish for the same thing, to live my life without pain and this awful deformity.
I have never been the type of person to ask for help, but sadly I feel I have no choice anymore. I feel so lost. So heartbroken. I’m in tears constantly.
But please If anyone could be kind enough to please please donate any spare amount of money they have to go towards my treatment, even the smallest bit would help so very much, I would be so forever grateful.
Even if you cannot donate I truly appreciate taking the time to read my story.
Please if you can spread awareness, know the early signs and most of all please be kind to one another.
I hope you have the most loveliest day/evening♥️
- Alli
Organizer
Allianne Calliea
Organizer
Houtman Abrolhos, WA