
Traveling to Cincinatti for Maddy!
Donation protected
Hey there,
If you know me, asking for help is my weakness so this has taken me a lot of thought to do this. Thank you for taking the time to even click on the link & read. Some know & others don't, but Madison has a very rare genetic disorder called CHARGE syndrome. It's an acronym for several different anomalies that effect her daily life. We're fortunate to live near Duke & UNC, both of which provide her with great care but aren't experts in this syndrome. Cincinatti Children's is the only facility that has a group of providers who do specialize in CHARGE and we've been working for quite awhile to arrange an appointment there. While there she will under go lots of test, appointments and so on. This is especially an important trip as she is getting older & w/ the syndrome being so rare, there are some things that our medical team won't know. We've almost finalized this process. However, flights are very expensive as well as room & board for the week that we'd be there. If you feel led in your heart to donate, it would be very appreciated. Prayers are also welcomed as this is an extensive visit and comes with a lot of news/answers... some of which are great & easy to hear, while others might not be. Thank you very much.
With love, Amber & Madison
Organizer
Amber Hedrick
Organizer
Durham, NC