Charlie Grace has Mps1 which is a rare genetic disease that is terminal with no current cure. She had a bone marrow transplant in May 2019 to help prolong her life but it is slowly failing. We considered a Gene Therapy Trial but our BMT Doctor does not support it. We must have a 2nd transplant. I'm a single Mom and I have to stop working to save Charlie again. We will start transplant in December. In the mean time we are searching the donor registry for a match and I am packing up our belongings to put into storage for our LONG stay in Cincinnati. I will need to get us another home when we come back. We need help because I will be out of work for another year! I have no family who are able to be with us during transplant or help us financially. We need and appreciate your giving heart...and please pray for Charlie Grace...specifically that she survives this transplant. I can't be without her.
God Bless you and BIG hug
And please follow Charlie's facebook page so you can pray through her journey!
https://m.facebook.com/Geesprayerhouse

And please follow Charlie's facebook page so you can pray through her journey!
https://m.facebook.com/Geesprayerhouse
Organizer
Amanda Sinard
Organizer
Cincinnati, OH