Toni williams. Calciphylaxix help

Well, my mom, Toni Williams, is sick. Very sick. After 2-10 day hospital stays and a battery of tests, the real fear from the doctors and all of us that she had cancer, which so far, she does not, her diagnosis is called calciphylaxix. A tremendously, rare disease. Actually the doctors only see this condition in patients who are on dialysis for at least 10 years. So they are confused as to why she has it, but she does. We think it could be because of her renal failure in December.
Also, she has some kind of infection that causes cysts in her kidneys now. Calciphylaxix is one of the most painful conditions a person can get. Also, the medication that is not covered by Medicare, is $2700 a month for 3 months. This is obviously crazy. We've looked for help, but there's a chain of custody issue with the medicine.
We are requesting prayers and help. From all of us to all of you. We love you