Together for Bentley: Learning and Advocacy

Dear Friends and Supporters,

We are reaching out with an incredible opportunity to learn, connect, and advocate for our son, Bentley, who has been diagnosed with the rare genetic disorder Coffin-Siris Syndrome (CSS). A conference dedicated to CSS is coming up, offering us the chance to gain critical knowledge from medical experts, discover the latest research, and, most importantly, connect with other families who share our journey.

As parents, we are constantly seeking ways to better support Bentley’s health, development, and future. Attending this conference would provide us with invaluable resources, guidance, and a sense of community that is often hard to find with such a rare condition. Unfortunately, the costs of travel, accommodations, and conference fees are significant, and we need your help to make this life-changing experience possible.

Your generous support will help cover:

✅ Conference registration fees

✅ Travel and lodging expenses

✅ Educational materials and resources

By donating, you are not just helping our family—you are empowering us to bring back knowledge that can improve Bentley’s quality of life and share it with other families navigating this rare diagnosis. Every contribution, big or small, brings us one step closer to making this journey a reality.

Thank you for your kindness and generosity. We are so grateful for your support!

With love and gratitude,

The Heppenstall’s