Together for Adina’s Health and Well-being

Adina’s care fund pays for mold detox, specialized medical care, and lost income

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61 donors
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$2,569 raised of $10K

Together for Adina’s Health and Well-being

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As many of you know, our beloved Adina has been struggling with her health for some years now, having been diagnosed with a genetic connective tissue disorder called Hypermobile ehlers-danlos syndrome, or hEDS, as well as mast cell activation syndrome (MCAS) and dysautonomia.
These alone cause tremendous strain on Adina's body; destabilizing connective tissue that have dislocated her shoulder and jaw, cause systemic pain, inflammation and fatigue as well as affect her mental clarity and hormonal/energy function.
While living in Santa Fe, NM last year, Adina was further hindered by exposure to black mold which has resulted in aggravation of her chronic symptoms and has rapidly declined her health.
She is now navigating constant pain, severe histamine reactions that are potentially threatening, extreme fatigue, brain fog, weight loss, hair loss, food sensitivities that make it difficult to regularly eat without a reaction, and many other symptoms that have been worsening.
Outside of work and routine day to day needs, Adina has been minimally able to leave the house. She has had to routinely cancel or postpone 25-30% of her work obligations and forgo bigger projects that she depends on for income due to her health, and has exhausted the resources and energy she has. She has voiced that she has been doing everything she can to support and care for herself, but can no longer keep up with escalated expenses and declining health. She needs both immediate care to treat hypermobile ehlers-danlos syndrome, mast cell activation syndrome, dysautonomia, anemia, hormonal imbalance, and black mold exposure.

Adina has committed her life to the healing and well-being of others-we have all been touched and guided by her presence through her yoga classes, reiki sessions or just as a friend and family member.
]She needs our support to rest, heal, and give her time to recover. Unfortunately, our government safety nets like disability and unemployment do not extend to self-employed/independent contractors like Adina, her journey ahead will take time and is facing significant costs for her care.
Whether donating $10 or $100, this GoFundMe will contribute to Adina's medical expenses. Specialized medical care, whole food nutrition, physical therapy, mold detox, hormonal imbalance support, specialized dental care, regular doctors visits are just some of the many compounding costs. Our goal is to raise $10,000 to cover Adina's healthcare costs.
Let's put our efforts together to alleviate some of her stress and show Adina just how much she means to us.

Thank you so much


Statistics and facts about some of the conditions Adina is facing:
"A recent U.S. study examined the financial impact of Ehlers-Danlos syndromes, including both out of pocket medical costs and indirect costs. $13,450 per year on average was spent in out-of-pocket healthcare costs.
One third required financial assistance from family or friends.
Many patients reduced work or stopped working because of illness.
Even insured patients face significant financial burden.
Costs go beyond medical bills (lost income, caregiving, travel). "
Schubart JR, Schaefer EW, Mills SE, Knight DRT, Shen C, Francomano CA.
The Financial Impact of Ehlers-Danlos Syndromes on Patients in the United States in 2022. Mayo Clin Proc Innov Qual Outcomes.

"EDS is considered an "invisible" illness: patients look healthy but struggle with pain and fatigue that can make simple tasks like cooking or getting dressed feel unmanageable." Isable Huang, M.D.

"Mold, histamine, and MCAS testing is often expensive or invasive." Dr. Michael Ruscio, D.C.

“The basic issue with mold toxicity is it triggers a prolonged, chronic, inflammatory response… It usually takes a year or more to get mold out. This is not a quick fix.” Dr. Neil Nathan

Organizer and beneficiary

Julia Coron
Organizer
Detroit, MI
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