To Cure A Rose

Before becoming a father, music was my life. Songwriting and performing around the world was my way of surviving after losing both my dad and brother at a young age. But when I was told I might also lose my daughter Rose, the music stopped.                         

Rose is beautiful, kind, and determined. She’s unique. She has no words, but she tells me what she’s thinking through her eyes. When she’s happy, her laughter lights up the room. When she’s sad, her screams pierce the air. Sometimes, she looks at things I don’t see and cries when life is calm. 

Rose has a devastating rare genetic disease, HNRNPH2. 

54827022_1614015702102543_r.jpegChildren with this disorder struggle to connect to their parents and siblings, to play with kids and attend school, to tolerate sounds and sensations of everyday life. Many of these children degenerate over time. Some die young. 

Rose can no longer say “daddy”. She continues to retreat into a world I’m not part of. And her life will only get more painful, and may end too soon.

But today there is hope. Recent genetic treatments have shown that diseases similar to Rose’s can be stopped, even improved. But the burden falls on me to raise the money and put together the scientists to make this happen in time for my daughter and other children like her.

YOU can help Rose!

1) GIVE 
whatever you can. No donation is too small (tax-deductible)
2) SHARE 
on social media (#ToCureARose)
3) EMAIL this page to your family + friends.

The window of opportunity is closing. Our team of experts is nearly complete. Now, we need YOUR help to raise $2 million to fund the ground-breaking work toward a treatment for Rose and other children like her who currently have no hope.  Together, we can do this!

Forever grateful,
Casey

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To Cure A Rose Foundation was started with the mission of bringing genetic therapies to children like Rose. We have a path to create a novel antisense oligonucleotide (ASO) and gene therapy for children with HNRNPH2, opening up a second chance at life. In turn, our work will help accelerate these exciting platforms across rare diseases as a whole. Our hope is that by doing our part, we will help offer a brighter future to all these children, one Rose at a time. To see To Cure A Rose Launch Concert: https://youtu.be/ZzQX1YXbhjU

To Cure A Rose Foundation is a 501(c)(3) with pending status.

Donations

 See top
  • Logan Brannigan 
    • $20 
    • 9 hrs
  • Geoffrey Ziegler 
    • $50 
    • 15 hrs
  • Ralf Geisse 
    • $50 
    • 8 d
  • Scott Bauerle 
    • $500 
    • 10 d
  • Tim and Dawn Laseter 
    • $200 
    • 10 d
See all

Fundraising team (4)

Casey McPherson 
Organizer
Raised $17,434 from 191 donations
Austin, TX
Lowell Simon 
Team member
Raised $740 from 14 donations
Julia Vitarello 
Team member
Raised $25 from 1 donation
Genevieve Swilley 
Team member
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