Toby fundraiser

Hi my name is Steve and I have volunteered to do a sponsored walk to the top of Blackpool Pleasure Beach Resort’s Iconic -The Big One on 22nd June 2025, it’s 235 feet which doesn’t sound a lot but I do get a harness and helmet. I am helping to raise funds to send a good family friend’s son Toby to Mexico to receive ground breaking treatment.

Toby who is 11 years old has a rare genetic disorder called Syngap1, a gene mutation that leaves him non-verbal, with a severe learning disability, and challenging behaviour. He’s also incontinent and under observation for absent seizures. Despite these challenges, Toby is a joyful, funny, loving boy who adores the Blackpool Tower, the circus, fireworks, music, and flashing lights .

The pioneering treatment is in Mexico from NeuroCytonix, a cutting-edge medical technology company. This Cytotron machine-based therapy could transform his life. In the UK, the NHS uses Cytotron machines for cancer treatment, but NeuroCytonix, founded by J. Roberto Trujillo, M.D., Sc.D. from Harvard University, focuses on neurological diseases like cerebral palsy, stroke, and traumatic brain injuries. More importantly they’ve treated around 10 children with GENE MUTATIONS like Toby’s, seeing very promising results including SPEECH! The treatment is non-invasive with no side effects, and Toby’s family are desperate to give him this chance!

His family need to fundraise £45k to cover the treatment, flights, and accommodation for a 32-day stay in Mexico.

Please give what you can to help this lovely family.