Our sweet 2-year-old son, Tobias, has already faced more than most people do in a lifetime.
Shortly after he was born, he developed a life-threatening condition called NEC (necrotizing enterocolitis). It’s something no parent is ever prepared for. In order to save his life, doctors had to remove 90% of his small intestine, leaving him with what’s known as short bowel syndrome.
Because of this, Tobias depends on TPN (total parenteral nutrition) and lipids for 22 hours a day just to survive. That means he is connected to a central line almost all day, every day. It keeps him alive—but it also comes with constant risks, hospital visits, and overwhelming medical needs.
Our daily life revolves around:
• Managing his TPN and central line
• Frequent doctor visits and hospitalizations
• Monitoring for infections and complications
• Providing constant care to keep him safe and stable
On top of that, the financial burden has been incredibly heavy. We are struggling to keep up with:
• The high cost of TPN and medical supplies
• Ongoing hospital bills and specialist care
• Everyday necessities related to his condition, including diapers and specialized creams to treat severe skin breakdown
Despite everything, Tobias is the happiest 2-year-old we know, especially with how much he goes through and has to endure. He has the biggest smile and the cutest little laugh, and he brings so much light into our lives even on the hardest days.
We are doing everything we can to give our son the life he deserves while he’s able to live it, but we can’t do this alone anymore.
If you feel led to help, any donation—no matter the size—will go directly toward his medical care and daily needs. If you’re unable to donate, sharing our story means just as much to us.
Thank you for taking the time to read about Tobias and for being part of his journey. Your support truly means more than words can express.





