Simon Hubbard was only 39 years old when his personality started to change, at first it was only minor things that Simon would say or do that was completely out of character. Gradually, as the months past, his behaviour started to deteriorate and the true gentleman that we all knew, started to slowly but surely disappear.

After a very difficult and challenging journey, it wasn’t until Simon was eventually seen by a specialist at the Harplands Hospital in March 2015, when Simon & Lisa finally received the devastating diagnosis. Simon was suffering from Frontotemporal Dementia, a degenerative disease of the brain, that we associate with older adults and not a man of such a young age. His family and friends were totally devastated and in shock by the diagnosis.

Simon’s condition continued to become more debilitating, eventually the family made the heart wrenching decision to transition Simon into a specialized care facility. This cruel disease stole every shred of Simon a ‘gentle giant’ everyone knew and loved. His vibrant and out-going personality began to retreat. The once, sharp witty remarks were replaced with confusion and frustration. His family, including his young children Lilly and Joseph, had to watch as this disease slowly stole away every aspect of his personality, their fun-loving Dad, who was no longer recognizable to them.

Simon’s legacy extended beyond his illness, the impact he had on those around him, the love and compassion he showed and memories he created, would forever be cherished. I know all of you have so many happy memories of Simon and your time together, and that is how Simon would want you to remember him.

Simon sadly passed away on Sunday evening surrounded by his wife Lisa, Mother Margaret and sister Sara.

Lisa, Sara and Margaret are now trying to give their precious Simon the funeral he deserves. I am sure we would all like to join in and do the same. Funerals can indeed be emotionally and financially challenging. I am writing this in the hope, that as many of us as possible could try to make a donation, no matter the amount, to help alleviate the financial strain and to ensure that Simon’s farewell is a meaningful and memorable tribute to his life.