Hi all, while I will try and make this as short as possible, I want to be as honest and transparent as I can with our family’s situation. As we are very aware that we were able to raise such a huge amount to go towards my nieces funeral, and are so incredibly grateful to all who were able to donate no matter how big or small.

As some of you may know we lost my 21 year old niece Morgan on 23rd July 2025 after a long 6 month hospital stay in 2 different hospitals, and a hospice. This was due to seizures from an extremely rare condition called Succinic semialdehyde dehydrogenase deficiency (SSADH).

Now if this wasn’t difficult and heartbreaking enough, that very same day only 6 hours later, my sister received a call from my then 6 (now 7 year old) nephew Axel’s school to inform her that he had collapsed after being elbowed in the head and was continuously vomiting. My sister and her partner Jack, rushed to take him to hospital. Where everyone initially thought was due to having concussion. Within a matter of hours Axel was taken for a CT scan which showed a bleed on his brain and was immediately transferred to Addenbrookes hospital. By the time he arrived there and had a repeat CT scan, the bleed was significant. He had suffered a ruptured brain aneurysm, that was present from birth but undetected until 23rd July when it ruptured and caused the bleed. He was taken in for his first head surgery that evening and placed into a coma. He has since had 5 surgeries all on his head, he has a peg feed and is unable to communicate, the connection from his brain to his eyes are also not working, which had resulted in him now being registered as visually impaired. To add to this, in the last couple of weeks he has had an EEG after my sister and Jack noticed abnormal body movements, which has showed he is also having seizures. This has now been put down to having epilepsy caused by his ruptured brain aneurysm.

Axel’s life has been flipped upside down, as well as his siblings, his mum and Jack’s. Axel is going to need 24/7 hour care for what we can only imagine, the rest of his life, and lots of adaptations made. They are all having to move house as their house is not suitable for Axel to go home to after he has finished his minimum 3 month stay at a children’s rehabilitation centre he was moved to on 13th November 2025. Axel is now a wheelchair user, and has to be hoisted to transfer from bed to wheelchair etc.

The reason for this GoFundMe page, is because my sister is going to need a wheelchair accessible vehicle to just be able to take Axel out, whether that be to the shops or a day out. She has 5 other children, herself and partner who also need to get in that vehicle so that they can go out as a family. Currently, even with possibly getting a vehicle of this size and wheelchair accessible on mobility, she is looking at a £14,000 upfront fee.

If you’ve got this far, we really appreciate you taking the time to read this. Although this really is a long story short.

All of the messages, donations and support we as a family have received over the last few months, and this year as a whole has been hugely overwhelming in every way possible. So we massively, more than words could ever explain appreciate anyone who can spare anything at all to help go towards getting Axel and his family a vehicle so that they can go out as a family as they always have.

Imogen x