To Duke Hospital and beyond! Epilepsy is no fun!

Last year I found out through Duke Hospital that I have generalized seizures. I am terrified that I will not be able to come up with the funds to pay for my seizure treatment. I DO NOT want to left untreated for seizures. I am currently trying out medications to try to stop the seizures. This process can take years and requires frequent EEGs to make check my seizures activity. EEG’s are very expensive. Seizures limit me considerably because I can’t drive and frequently have to pay for transportation. I can’t imagine my life not being treated for this condition. I don’t ever want to go without Healthcare treatments. I will need a lifetime of access to healthcare. I really appreciate what my doctors have been able to do so far.

I have put several things in place to try to be sustainable but nothing has come through for me yet. It takes 18 months to complete the SSDI process and I am still waiting for relief. Our governmental disability waiting time is simply a cruel policy. Fingers crossed I get answers in 2022.

Many of you have donated to help my recovery. Words cannot express my gratitude. I love living and you all have given me hope for my future. Any donation amount greatly helps me get adequate healthcare and transportation. To all of my past, present and future guardian angels, thank you.