we are raising money for chestnut tree house to celebrate Kiera's 16th birthday as Kiera passed away 15 years ago at Chestnut Tree House please read her story below

we also have an event in chichester

✨ Coldplay Tribute Night – For a Great Cause! ✨

Join us for an unforgettable Coldplay Tribute Night in support of Chestnut Tree House

For just £25, you’ll enjoy a fantastic night of live music while helping to support the incredible work Chestnut Tree House does for children, young people, and their families. It’s the perfect chance to enjoy great songs, great company, and give back to a truly meaningful cause.

Amazing live tribute

Supporting Chestnut Tree House

Tickets: £25

Come along, sing your heart out, and help us make a difference. Every ticket sold helps support this amazing charity.

Don’t miss out – get your ticket and be part of something special here

Get your tickets here

https://www.eventbrite.co.uk/e/coldplay-tribute-for-chestnut-tree-house-tickets-1980747277427?aff=oddtdtcreator

Kiera's story

The only sign of anything unusual in pregnancy was Polyhydramnios (too much amniotic fluid) the baby wasn’t swallowing very well.

Kiera was born on Monday 21st December 2009 she was small weighing 5lb considering she was born 9 days past due date.

She stayed on shipwreck and Starfish wards at QA hospital for 4 months, Kiera had Laringo Malasiea (a floppy larynx)

Gastro Reflux Disease and was lactose intolerant, and was on medicated milk called Neocate.

Her oesophagus was open so when she was lying down all the contents of her stomach came back up and made her sick.

When Kiera was sick she would aspirate into her lungs, she had pneumonia many times.

In the parents’ room at QA, while being visited by family and friends the idea of putting Kiera’s pants on her head seemed amusing, before long the whole family and friends support group put Kiera’s pants on their head too and even the nurses and doctors, many pictures were taken to remember these silly moments in-between all the medical worries the family went through.

Kiera had an ECG to show 2 muscular ventricular septum defects (holes in the walls of the heart chambers) and a PDA (a left open blood vessel that is causing turbulence in the bottom chambers and making more holes).

Kiera had an ‘S’ shaped spine growing outwards. Kiera was scanned on her soft spot on her head and the scan showed that her head was smooth all over. The doctors said they had never seen that before and would look into what that meant.

‘Lissencephaly’

Kiera had more bloods taken and an MRI to explain that her brain was smooth and didn’t have any bumps or grooves.

The blood test results came back from the genetics team, it showed that Kiera has a rare genetic neurological condition called Lissencephaly Miller-Dieker syndrome (MDS) which is a gene deletion.

Miller-Dieker syndrome (MDS) is a deletion of chromosome 17p Lis1 gene, it affects major motor functions, delayed growth and mental development, multiple abnormalities of the brain, heart, kidneys and gastro-intestinal tract, epilepsy and feeding difficulties. Death tends to occur in infancy and childhood.

With all the medical complications Kiera had it wasn't likely she would live past 6 months.

Hearing the heartbreaking news the family wanted to make the most of every day they had with her and planned a christening in 2 weeks. Kiera was allowed out of the hospital for a few hours for her christening with nurses supervision.

learning how to feed Kiera with the NGTube and first aid, Kiera was allowed home, with community nurse visits every few days and a health care plan. Kiera had sessions at Portage for sensory stimulation and baby groups to hear other babies as she couldn't see properly or interact at all but showed reactions to some sounds and colours.

Chestnut Tree House gave support to Kiera and her family. They offer respite care that provides medical help by nurses that are always around day and night. This is a hospice for terminally-ill children up to adolescence.

Kiera was diagnosed with epilepsy she was having 4-6 seizures daily. The medication Orlept – Sodium Valproate made her very sleepy.

Kiera had come a long way and turned 1 on the 21st December 2010.

Kiera had a Little Miss Sunshine cake as she was always called “Little Miss Sunshine” by people who knew her.

Kiera had been given some new meds for her epilepsy while in hospital after contracting Swineflu, Cloberzan and Midazalan making her sleep even more, her hours awake were only a few hours a day.

Kiera continued to deteriorate each day until she was in a non-convulsive state but the EEG showed continued seizures while aspirating secretions into her lungs. The doctors told the family that Kiera’s right lung had collapsed and that she was very ill and needed a lot of oxygen.

Her health declined very quickly, it had got to that time that they had been told would come, a decision had to be made where she would go to die, at hospital or at home or at Chestnut Tree House.

The family contacted Kiera’s nurse from Chestnut Tree House, they left QA by ambulance to Chestnut Tree House at 4am 28th of January with one of Kiera’s favourite nurses.

On arrival they were taken to the Autumn room.

Kiera was put on some pain relief and some more oxygen to make her comfortable.

The doctors said she was very weak and may not make it through the night.

Kiera laid on the water bed with all her favourite lights on that she loved during a session at the sensory room at portage.

Kiera loved the bubble tube with the sounds of bubbles in water floating up to the top and the feel of the vibrations, the fibre optics lights and twinkly stars all around her.

Kiera got her angel wings and went to heaven Sunday the 30th of January 2011.

A little white feather fell down from the sky and landed on the lake outside the reflections room at Chestnut Tree House, Kiera's nurse said that seeing a white feather fall down is a message sent from heaven.

The Stars room is where Kiera stayed on a cold bed until the funeral at Chestnut Tree House.

After the funeral a balloon release of yellow balloons were sent up to the sky with the song 'yellow' by Coldplay.

A few months after Kiera died the family organised a sponsored pants on head walk from South Downs College going up across the top of Portsdown hill to raise money for Chestnut Tree house.

15 Years on the family have been supported by Chestnut Tree House with bereavement care, remembrance days and sibling support for Kiera’s 2 Brothers and Sister.

The family feel that their support have helped keep Kiera's memory alive with all that they do to help them and now in remembrance of Kiera for what would have been her 16th Birthday they want to raise money for Chestnut Tree house with a Coldplay tribute concert 23rd of August 2026 in Chichester.