
Team Tracie Treatment for POTS
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Recently my 15 year old daughter Tracie was diagnosed with a rare condition called POTS (Postural Orthostatic Tachycardia Syndrome). Tracie was a normal fun loving, very outgoing, and helpful young lady untill recently. One day, not to long ago tracie was at school, like every other day, when one of her teachers happened to walk by her and noticed that she had lost all color in her face. She was grey and her lips were white. He sent her to the nurse to be checked because to him she looked scarey. Her friend in the class walked with her to the nurse and by time they got there Tracie was very lightheaded and dizzy. She was sent home. I took her to the doctors to be checked. While in the doctors office her doctor noticed that Tracie's pulse rate kept going up and up. She refered her to a cardiologist. That is when the testing began.
Tracie was seen by the cardiologists at Children's Hospital in Pittsburgh. She had several different blood tests and xrays. She had countless EKG's done and an echocardiogram. The doctor first thought she could be suffering from prolonged QT syndrome but then dug a little deeper and found that not to be the case. Tracie then went back for a follow up appointment with another doctor. This doctor came in with a full sheet of questions for Tracie about what she has been experiencing. The doctor then got this look on her face and said she thinks she knows what is going on with Tracie. She explained she had to do a couple more tests just to be sure. The tests were done right there and we had the results, tracie has idiopathic POTS. So my question was where do we go from here. The doctor told us that there is no magic pill or cure for this. She explained that this is very rare and only about 300,000-500,000 people in the US have been diagnosed with this. So we left with a diagnosis but no clear treatment. Thats is where I stepped in and started doing some research. I found a treatment center for POTS that has a high success rate. Unfortunately it is in Dallas TX. ; that is the reason for this gofundme. In total it will cost us nearly $15000 for the trip, hotel, the 2 week treatment, and supplies she will need to bring home with her to continue treatment.
I know this is a lot to ask for but Tracie is such a wonderful young lady that is normally so full of energy to watch her just sitting there so tired and weak barely being able to make it through a day of school is heartbreaking. If you find it in your heart and are able to give we would be so thankful. It would make a world of difference for Tracie and us. Thank you for taking the time reading this.
Tracie was seen by the cardiologists at Children's Hospital in Pittsburgh. She had several different blood tests and xrays. She had countless EKG's done and an echocardiogram. The doctor first thought she could be suffering from prolonged QT syndrome but then dug a little deeper and found that not to be the case. Tracie then went back for a follow up appointment with another doctor. This doctor came in with a full sheet of questions for Tracie about what she has been experiencing. The doctor then got this look on her face and said she thinks she knows what is going on with Tracie. She explained she had to do a couple more tests just to be sure. The tests were done right there and we had the results, tracie has idiopathic POTS. So my question was where do we go from here. The doctor told us that there is no magic pill or cure for this. She explained that this is very rare and only about 300,000-500,000 people in the US have been diagnosed with this. So we left with a diagnosis but no clear treatment. Thats is where I stepped in and started doing some research. I found a treatment center for POTS that has a high success rate. Unfortunately it is in Dallas TX. ; that is the reason for this gofundme. In total it will cost us nearly $15000 for the trip, hotel, the 2 week treatment, and supplies she will need to bring home with her to continue treatment.
I know this is a lot to ask for but Tracie is such a wonderful young lady that is normally so full of energy to watch her just sitting there so tired and weak barely being able to make it through a day of school is heartbreaking. If you find it in your heart and are able to give we would be so thankful. It would make a world of difference for Tracie and us. Thank you for taking the time reading this.
Organizer
Heather Pittman
Organizer
Mercer, PA