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Dear Family, Friends, and Kind Visitors,
We are writing to ask for your help in making a lasting difference for our son and his family. Our amazing son, Scott, is a deeply-loved and dedicated family man, respected colleague, devoted father and husband, loyal brother, cool uncle, fun-loving friend, and all-around great guy. He has always been there for his friends and colleagues, supporting them and encouraging them to be the best they could be. He was even a multi-sport athlete until 2022, when he was diagnosed with ALS. ALS has already taken Scott’s arm strength and mobility, and an enormous amount of his stamina. There is no cure for ALS; it is terminal. Most people with this disease eventually lose all motor function, even the muscles for speaking and breathing, requiring intensive personal care and technology for day-to-day living. Our family’s focus now is to live as fully as possible with this unrelentingly destructive disease.
Through everything, Scott has shown immense courage and positivity, meeting every challenge with a problem-solving attitude. He has shown kindness and love to everyone, even as his body has gradually lost function. Despite deep fatigue, he continues to work in order to support his family. He knows the time will come when he will no longer have the ability to be the primary breadwinner. His loving wife, Ruth, will soon have to quit her job to become his full-time caregiver. Soon ALS will take away Scott’s ability to walk and he will need to be in a power wheelchair full-time. He will also need a wheelchair van for transportation to work and to all of his medical appointments.
In addition to the expense of the wheelchair and van, Scott and Ruth will incur moving costs as they must leave their home of 20+ years to go to a wheelchair-accessible home. Insurance for the power wheelchair might cover some of the cost but a substantial portion remains as an out-of-pocket expense. Wheelchair vans are not covered by insurance. This is why we must ask for help.
Thank you to our awesome extended family and friends who have been wonderfully supportive with compassion, chores, visits and advocating for ALS funding legislation. We are a strong family with an amazing support system of friends to be there for us no matter how tough the fight becomes. Unfortunately, with ALS it does not get better as it is a consistent decline with no cure. We will not let this disease break us.
Even the smallest donation is deeply meaningful and appreciated. Every little bit adds up to our goal of transportation for Scott and to demonstrate the power of compassion between us all. If a donation is not possible, it would mean so much if you would think of Scott with warm regard and share this message with your family and friends.
If you would like to learn more about ALS, please click on this link:
We are so grateful for your kindness and thank you for whatever you can do to help.
With deep love and gratitude,
Faith and Steve (Scott’s parents)
