Arthur’s Journey with Pierre Robin Sequence

On July 28th, we welcomed our sweet boy, Arthur, into the world. Within hours, doctors noticed he was having trouble breathing and feeding, and suspected a rare condition called Pierre Robin Sequence (PRS). Less than 24 hours later, Arthur and his mom were on a life flight from Moab to Timpanogos Hospital in Orem, UT, where he’s now receiving specialized NICU care.

Thanks to the incredible kindness of friends, family, and even strangers, we’ve secured housing close to the hospital, allowing us to stay near Arthur during his treatment. We’re overwhelmed with gratitude for the support we’ve felt in these first chaotic days of his life.

Arthur’s Treatment Plan

Having a place to call home during this time has been a huge weight lifted from our shoulders. With that taken care of, we’re now able to focus our energy where it’s needed most - making sure Arthur gets the care and support he needs in the days, weeks, and months ahead.

Arthur’s condition affects his jaw, airway, and palate. The current plan looks like this:

1. Next week: A CT scan will create a 3D model of his jaw to guide surgery planning.

2. Around 44 weeks gestational age: Arthur will undergo jaw distraction surgery, where small devices will gradually lengthen his jaw, improving his airway and making breathing easier.

3. 4–8 weeks later: Once the bone heals, another surgery will remove the devices and begin repairing his cleft palate to help him feed properly.

4. A final surgery, about 4 months later, will complete the palate repair, improving flexibility and supporting normal speech development.

5. Ongoing therapies: Arthur will likely need follow-up care, including speech therapy and hearing evaluations, to ensure he can thrive as he grows.

Why We Started This Fundraiser

Many people have asked how they can help, and while we’re hopeful that insurance will cover much of Arthur’s immediate hospital stay and surgeries, there are still a lot of unknowns and potential long-term expenses ahead:

We’ve set up this GoFundMe simply as a way for friends, family, and kind strangers to support Arthur’s journey if they feel moved to help. There is no expectation or obligation—your love, prayers, and messages already mean the world to us.

Every donation, no matter the size, will go directly toward ensuring Arthur gets the best possible care now and in the months and years ahead. If you can’t donate, simply sharing this page helps more than you know.

From the bottom of our hearts, thank you for lifting us up during this unexpected and challenging time. Arthur is a fighter, and we’re so lucky to have such an incredible community standing with us as we navigate the road ahead.